Sabitlenmiş Tweet
Eva Batista
1K posts
Eva Batista
@Foreva_Strong_
SMA Type 1 | Diagnosed at 7 weeks | Spinraza x6 | Zolgensma at 15 months
Toronto, Ontario Katılım Şubat 2020
4.5K Takip Edilen206 Takipçiler
To think that Zolgensma will soon be accessible for future babies who desperately need it is truly emotional. This is such a win! 🙏🙏🙏😊😊😊
ONE STEP CLOSER!!!!!!!!!!
😭🙏🎊
English
🚨🚨🎊🎊HUGE NEWS🎊🚨🚨
HEALTH CANADA HAS APPROVED ZOLGENSMA!!!
This is such AMAZING news and everything we wanted and faught for. The fight is not over, funding is the next step but WOW is this ever the most amazing news and christmas! GOD IS SO GOOD!!🙏 💜💜💜💜
English
Eva Batista retweetledi
We need to see action today to help Reign, Max & Ocean access the lifesaving gene therapy, Zolgensma! Please don’t let them be forgotten.
@PattyHajdu @JustinTrudeau @tylershandro @MikeLakeMP @ThomasDangAB @RachelNotley @MichelleRempel @MichaelKramSK @WarrenSteinley
English
@Foreva_Strong_ I am so happy for your family! All the best!
English
(1/8) November 25th 2020,
TODAY EVA RECEIVED ZOLGENSMA! 🙏❤️
It is so hard to articulate how we are truly feeling in this moment. After all of the hurdles we have faced and after living such a dark year, today was the light at the end of the tunnel.. our dream come true!
English
#Zolgensma 🙏🏻🙌🏻✨💝 #ForEvaStrong
Eva Batista@Foreva_Strong_
(1/8) November 25th 2020, TODAY EVA RECEIVED ZOLGENSMA! 🙏❤️ It is so hard to articulate how we are truly feeling in this moment. After all of the hurdles we have faced and after living such a dark year, today was the light at the end of the tunnel.. our dream come true!
QME
(7/8) For now, we want to take in this moment and enjoy our big day and this amazing accomplishment. 2019 and 2020 has been the hardest years of our lives but we are overjoyed that Eva has finally received her miracle
English
(6/8) We are also working on something special and plan to give back to the SMA community, Sick Kids Hospital, organizations who have supported us and some families battling rare diseases and also some funds will be dedicated for Eva's future and her complex needs.
English
(8/8) & cannot wait to see all of the progress she will make in the future. Thank you again from the bottom of our hearts for all of your support and sweet messages. Together we gave Eva a second chance at life!
THANK YOU❤️🙏
With love,
The Batista's
English
SUPERHEROES
"A superhero is a character that possesses abilities beyond those of ordinary people, who typically use their powers to help the world become a better place or is dedicated to protecting the public and stopping evil."
English