Kimberly Mckercher

@GlobalCalgary @ReignJosiah1 @TracyNagai @WilliamShatner

An Alberta family has been dealt a devastating blow after recently learning their young son Reign does not qualify for Zolgensma funding. Reign’s mother, Alex Johnston, joins Global News Calgary @TracyNagai to discuss what this means for the family going forward.

@ReignJosiah1 @WilliamShatner @WilliamShatner your voice could be so influential in getting this sweet Canadian boy the lifesaving treatment he needs. Please, please share his story! Reign is the most incredible little boy.

Hey @WilliamShatner this is happening here in Canada too! Reign needs #Zolgensma this is a crazy amount of money to come up with! #sma #dancinginthereign #ableg #abpoli #savereignslife

@WilliamShatner @British_Airways @KLM @BostonChildrens @Novartis This is sadly happening in Canada too! Please checkout @ReignJosiah1 He is a beautiful little toddler in Alberta who is desperately trying to raise $2.8 million CA for the same lifesaving treatment for SMA1. He needs our help!!

Have you heard about this child & her condition? cnn.com/2021/03/31/hea… Why does a drug cost $2.1 million? 🤷🏼‍♂️ There has to be a way for this world to come together to make this happen. Where are @British_Airways, @KLM , hotels, @BostonChildrens & @Novartis to help this child?

We need to see action today to help Reign, Max & Ocean access the lifesaving gene therapy, Zolgensma! Please don’t let them be forgotten. @PattyHajdu @JustinTrudeau @tylershandro @MikeLakeMP @ThomasDangAB @RachelNotley @MichelleRempel @MichaelKramSK @WarrenSteinley

Dear Honourable @PattyHajdu we ask you to fight for each Canadian baby with SMA1. Time is not on their side and they need funding for Zolgensma today! #facesofsma

@PattyHajdu @adriandix Please consider funding Zolgensma for all of the children fighting to access treatment before their 2nd birthday. They can not wait.