Kevin Geraghty

@nadia_sethi @klink52 @ginaGib68993499 @nadia_sethi is my voice now and when I am gone. My voice will be heard and will not be shut up.

@klink52 @ginaGib68993499 And instead of stopping to think for a moment that maybe this turmoil hurt my family too, that seeing videos of people being able to do things in 2019 they had lost had us in tears of frustration too, and that my husband is dead, but I am still his voice, I am told to shut up.💔

If you ask for opinions you will get opinions. But sometimes when you don’t ask for opinions you get opinions anyway. You do you, boo! I will do the same. Follow the science. Say no to #onedrugadvocacy

Steve Gleason accepting the Arthur Ashe Award for Courage at the 2024 ESPYS. What a moment, what a man, and what a message:

@espn thank you for celebrating & supporting @SteveGleason story of courage & love in the face of ALS. Can we please get a little extra love & awareness for @TeamGleason similar to cancer and the V Foundation? They say ALS isn’t an incurable disease; it’s an under funded one

Thank you @SteveGleason for blocking that punt, which has saved my life @TeamGleason #IYKYK. This book has rescued me during the darkest & bleakest time of my #ALS journey, & resurrected my strength, courage & love. You’re an incredible inspiration to us all & we love you, Steve

Over the past 13 years, I've been documenting our journey with ALS. My aim has always been to see if we can discover peace and freedom with a love of Life, in the midst of extreme adversity. Being recognized at The 2024 ESPYS is not just an honor, but a powerful platform to further help and serve others. Thank you, ESPN, for this incredible accolade.

Congrats to @SteveGleason, who will receive the Arthur Ashe Award for Courage at the @ESPYS! #Saints | #NoWhiteFlags

The 100 Hole Challenge to Beat ALS is off to an amazing start! 36 holes down 64 to go! Help them hit their fundraising goal here: fundraise.als.net/hole100 and bid on incredible golf experiences here: go.memberforaday.co/hole100/Campai… #EndALS #ALSResearch

Join me in battling #ALS by donating to the ALS Therapy Development Institute: als.net/donate. If you're unable to donate, spreading the word also helps - use the hashtag #ALS to help raise awareness and support the cause. Big shout out and much love to Maria and Jules!

TY @ConanOBrien for raising awareness & supporting @ALSTDI !! 💚 We have supported this nonprofit biotech for 10 yrs. As someone with #ALS who never expected to live this long, it’s incredible to see the impact of the Ice Bucket Challenge. Celebrities caring makes a difference!!

@BrielmaierL Haha!

If you think nobody cares if you’re alive, try missing a couple of payments.

As your constituent & someone impacted by #ALS, I urge @repangiecraig to support #ALSResearch. Add your name to the FY2025 ALS Appropriations Dear Colleague letter today: als.org/Dear-Colleague #FundALSResearch

@nadia_sethi 💪💚Thank you for staying in the fight and all that you do for the rest of us each and every day.

And I would hide from ALS now, except that I promised myself daily as I watched him lose functions, many of which then became my duties (except that damn breathing part), that nobody should have to live like this. 2/2 #EndALS

If I could I would summon Sundeep from the afterlife to advocate for ALS. He progressed too quickly to do so when he was here... and now he's not. ALS colors my life every day still. 1/2

SPG302 tested in a TAR4/4 ALS model by Dr. Justin Ichida at USC youtu.be/jumhwPK44qA?si… via @YouTube

Believe in a cure in our lifetime 💙ALS is NOT incurable, it is underfunded. Join our fight to end ALS. hoponacure.org #cureALS

@ALSTDI @AnswerALS @Microsoft Well done and thank you for collaborating with each other!

The ALS Therapy Development Institute (@ALSTDI), @AnswerALS, and @Microsoft are pleased to announce a collaboration that will bring together the two largest existing clinical and omics data sets relating to ALS.

@LorriCav 3

This is really bothering me so I need some opinions. It seems so simple: RELYVRIO (AMX0035) is a combination of the supplement TUDCA and sodium phenylbutyrate) RELYVRIO is $158,000./yr (prescription) TUDCA alone is 5,000./yr (on Amazon) Total yearly savings of $153,000.!!!! Why wouldn’t ANYONE with #ALS celebrate, knowing that an over-the-counter SUPPLEMENT could possibly produce the same efficacy as an incredibly high-priced drug? Difference being, they could now afford it! @BellinaDeb @ALSMNDMamaBears @KandySimons @klink52 @BridgetRebecca4 @plainJaniexx @mattwoman @ginaGib68993499 @makerisafer @mustangshellyd @Smithstrongmom @nicolecimbura @FarberStacy @BartBaker @HaterAls @als_now @aVoice4ALS @bsw5020 @sabrevava @iamalsorg @MinoSean @MaxGelman @damiangarde @adamfeuerstein @VPResearch_ALS @KevinMGeraghty @JulieBanderas @AP_FDAwriter @statnews Please take the poll below and share….which trial outcome results are more important to you? 1. TUDCA & RELYVRIO 2. RELYVRIO (AMX0035) 3. TUDCA (Phase 3)

@LiveLikeLou4 @MLB who is the Minneapolis lead? I 'd like to get involved.

Join us this summer to celebrate @MLB's Lou Gehrig Day! ⚾ For many impacted by #ALS, #lg4day creates a heightened awareness of the disease. Ticket sales for our block of seats at each game and pre-sales for a special jersey begin soon. Learn more: phide.lt/3P9qYEG

@KickenALSAss thanks for the thought, Christine!

@KevinMGeraghty Is your income too high for a grant from Healthwell?

I stopped Relyvrio 6 wks ago due to new $3k monthly out of pocket cost. I was expecting #TUDCA results to help inform strategy as to if I eat the cost for the rx or buy the supplement. 4 mths is too long to wait when you have #ALS.

@KickenALSAss I wouldn't qualify