Long Covid Moonshot

As many of you are waking up to some devastating news, please know that you’re not alone in feeling the weight of this moment. Many of us are grieving this outcome, especially those in the #LongCOVID, #IACC, and #disability communities, who will bear a profound impact. The work we’ve done, and the progress we hoped to achieve, now face serious setbacks. Today, we’ve seen public health take a hit; we’ve compromised resources, put vulnerable populations, including women and children, at greater risk, and disregarded ethical considerations. It’s a difficult day for all of us, but one thing remains clear: we have to fight harder. Our communities are resilient, and we need every single one of you with us to keep pushing forward. Now, more than ever, we need solidarity, strength, and commitment. Together, we can work toward a better future, even in challenging times. #TogetherWeFight #PublicHealthMatters

I just wrote a @LCMoonshot letter: Moonshot for Long Covid - Research funding to help 20 million sick Americans. Write one here: actionnetwork.org/letters/earn-o…

Just wrote a @LCMoonshot letter. Takes just a minute here: actionnetwork.org/letters/earn-o… If you can spare a few extra moments, add a bit of your story to the letter. Help open the eyes + hearts of our Senators + Reps to the diversity of those affected + how this support will help.

📬 Write your legislator! Tell them to represent the millions with #LongCovid by cosponsoring the Long Covid Moonshot Research Act! Takes 1 minute with our template 👇 actionnetwork.org/letters/a541ca…

@LifeAccrdingLiz Ah, gotcha. We don’t know which states/zip codes people are calling from, they just enter the zip code they live in on the site to find their legislators’ contact info.

@LCMoonshot Good plan. To clarify, what states and zip code are you calling from? I'm registered to vote in Bucks County PA. Though calling from my current zip code of Washington DC.

Election season is here, so let's make sure our legislators represent everyone with #LongCovid longcovidmoonshot.com/call-guide

@LifeAccrdingLiz For this campaign, we are just having folks contact their representatives based on their zip code :)

@LCMoonshot What states and towns are you calling from so we can keep track of offices reached.

Called my Senators because my Rep is already a cosponsor of the House bill. Who’s next?

Will be calling today! 📞 Hoping we can get more Congressional support for such an important issue!

It’s time to act! 📢

@LifeAccrdingLiz @PlzSolveCFS Thank you for your advocacy!!

DC bound to my second address for a good bit. Returning home to vote in person of course. No need to wonder if I'll spread the word about #pwLC’s @LCMoonshot Our elected officials may not be in DC, but their staffers are #LongCovid #FundLongCOVID #TreatLongCOVID @PlzSolveCFS @Dysautonomia @UMDF @NIH @NIH_NINDS @nih_nhlbi @Dysautonomia @LCCampaign

“In the most expansive study of its kind, researchers have for the first time shown serious and prevalent symptoms of #LongCovid in kids and teens. The study, which followed 5367 children, found that 20% of kids (ages 6-11) and 14% of teens met researchers' threshold for LC”

We need more voices. To my #LongCovid and #LongCovidKids parent friends, please submit your feedback if you have the energy🙏🏻

We've got a new campaign dropping next week. Stay tuned, and get those advocacy muscles ready! ❤️

20 million Americans with #LongCovid — & millions like me & this person lost their job & close to everything because of it. @VP answer should be “I will make sure Congress passes #LongCovidMoonshot & SSDI expedites wait times to address this devastating public health crisis.”

Please @drinkLMNT! A % of your customers are folks disabled by complex chronic illness like #LongCovid, #POTS & #MECFS who need lots of electrolytes. There is a bill in Congress called Long COVID Research Moonshot Act to fund research into these neglected conditions.

ok but how can we make this happen @drinkLMNT 😜 (📷 credit: @mrcrowy100)

Make your experience count — report just a few treatments, supplements or meds you have tried, whether they worked or not, for #LongCovid! We are so close! 3️⃣ 2️⃣ 1️⃣ ⭐️

We need three — yes, just 3 — people to fill out the Cure ID survey with just a few treatments you’ve tried and whether they helped or not! As soon as we have 500, they can begin processing the data!

Thank you to @Ilhan & @RepPressley for leading a House companion bill for the #LongCovid Research Moonshot Act! This bill will fund research, education, care, and more. Call your Representatives to ask them to co-sponsor longcovidmoonshot.com/call-guide/