Dedicated the #UMMID (Unique Methods of Management of Inherited Disorders) Programme for Rare Genetic Disorders/ Diseases to the Nation. Possibly the first of it's kind, the programme has been designed by the Department of Biotechnology, Ministry of Science & Technology. My Address Takeaways: "India is steadily entering an era where healthcare, diagnosis and treatment will increasingly become genome-based, precision-driven and individualized according to the genetic profile of every patient. Inherited Rare Genetic Disorders or Diseases remained neglected for decades because diagnosis itself was difficult, treatment inaccessible and medicines either unavailable or prohibitively expensive, making it essential to build a coordinated national mechanism to make diagnosis and management feasible, affordable and accessible for all families. Rare Genetic Disorders represent a silent but deeply challenging public health burden, where families often spend years moving from one hospital to another in search of diagnosis and treatment. Despite affecting comparatively smaller populations, these disorders impose enormous emotional, social and financial hardship on affected families. UMMID is a major step towards mitigation of the ordeal of families affected by Rare Genetic Disorders , and in general also towards the future of precision medicine in India, the Minister said the initiative would also prepare the country’s healthcare ecosystem for the next generation of gene and genome-based medical care".
