Teera Fights SMA

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Teera Fights SMA

Teera Fights SMA

@TeeraFightsSma

Happy 5 month old baby fighting Spinal Muscular Atrophy with a smile. Linktree: https://t.co/cRtRfti2mC Follow @TeeraFightsSma & RT with #teerafightssma

Mumbai Katılım Ekim 2020
55 Takip Edilen435 Takipçiler
Vasundhara Tankha
Vasundhara Tankha@VasundharaTankh·
Spinal muscular atrophy is a rare genetic condition that children are born with. There is only one drug currently which cures this condition and it costs 16cr. Watch @VTankha bring awareness to this condition in parliament & give suggestions on how we can help. Each life matters.
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Teera Fights SMA
Teera Fights SMA@TeeraFightsSma·
Let's not start celebrating yet. There is a very long way to go before any of these recommendations are turned into law. This is a great first step towards making concrete legislation a reality. (2/3) fb.watch/4hSt2PUH09/
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Teera Fights SMA
Teera Fights SMA@TeeraFightsSma·
All the #SMA parents have done an excellent job in making our voices louder that today we had a discussion in the Rajya Sabha about the plight of SMA children in India. Thank you Hon. Rajya Sabha MP @VTankha for bringing this to the country's notice. (1/3)
Vivek Tankha@VTankha

Children & parents feel helpless. US Co Novartis manufacturers the miracle drug. In India it’s landed cost is 16 Crores plus 6 1//2 crores duties & taxes. Approx 2500 children need it annually I suppose !! None can afford. Don’t they have a right to live.

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Teera Fights SMA
Teera Fights SMA@TeeraFightsSma·
28th Feb #RareDiseaseDay #SMAisrare Rare is different Rare is unique Rare is strong We are rare, we are fighting for rare! @rarediseaseday
Rare Disease Day@rarediseaseday

#RareDiseaseDay is breaking the isolation of many people living with a rare disease in #Asia 🌏 and their families Our heroes represent the great collaboration that the rare disease community has shown in Asia #strongertogether 👉rarediseaseday.org/page/news/many…👈

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P. D. Hinduja Hospital
P. D. Hinduja Hospital@HospitalHinduja·
P. D. Hinduja Hospital administered Zolgensma Gene Replacement Therapy indicated for Spinal Muscular Atrophy to 6-month-old Teera Kamat earlier today. We are the only hospital in Mumbai authorized for this treatment. Watch the video here youtu.be/eLZkgVn-oNI
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Harshada Sahasrabudhe
Harshada Sahasrabudhe@HarshadaSwakul·
खूप आनंदाची बातमी आज सकाळी 10 वाजता तीरा कामतला अत्यंत गरजेचं zolgensma injection मिळाले. ती आता under observation आहे पण प्रकृती छान आहे असं तिच्या वडीलांनी कळवलं आहे. या प्रवासात आपण सगळे जोडले गेलो होतो. खूप खूप धन्यवाद. आज मी सगळ्यात जास्त आनंदी आहे 💜❤️💜 @TeeraFightsSma
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Teera Fights SMA
Teera Fights SMA@TeeraFightsSma·
We are glad to be in the capable and experienced hands of Dr. Neelu Desai @HospitalHinduja, who has provided her valuable time and guidance, and has wholeheartedly supported our SMA treatment journey so far. Truly grateful for all the help and guidance throughout. #teerafightssma
P. D. Hinduja Hospital@HospitalHinduja

Meet Teera Kamat, 6 months old, who has been suffering from this issue since birth. Watch the story on how her parents managed to crowdfund to give her best treatment & how doctors at P. D. Hinduja Hospital, Mumbai have been continuously supporting her. youtu.be/wDIq_VhdVVA

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Brut India
Brut India@BrutIndia·
This five-month-old baby is fighting a genetic disorder that has no cure in India. But more than one lakh people and the Indian government have come together to help her fetch the life-saving drug from the US.
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Mashhood Ahmad
Mashhood Ahmad@SimplyMashhood·
@narendramodi Ji @Dev_Fadnavis Ji Thank you for waiving 6 cr for @TeeraFightsSma's 16cr life saving injection. We highly appreciate it. But sir there are 100's of Teera across India waiting for life saving medicine, Wish these little souls could also get your help @curesmaindia
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Quint Fit
Quint Fit@QuintFit·
'The finish line is near!': In one of the largest medical fundraisers in India, 1 lakh people raised 16 crores for Teera, a 6-month-old with Spinal Muscular Atrophy. @Devinab21 talks to Mihir Kamat, her overjoyed father. | @TeeraFightsSma fit.thequint.com/health-news/te…
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Teera Fights SMA
Teera Fights SMA@TeeraFightsSma·
Please help baby Janish the way you came to Teera's rescue. Need help soon #SMABabiesDeserveBetter
GC ChandraShekhar@GCC_MP

Honourable @PMOIndia, I would like to draw your attention towards 11 month old Janish from Tumkur, has rare genetic disorder called Spinal Muscular Atrophy , only treatment is Zolgensma, for which medicine imported cost 16Cr, plz sanction the required amount and save the child.

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vinod kumar menon
vinod kumar menon@vinodkumarmenon·
@Ankurku85309600 @mid_day SMA kids are a bit special from regular new born's and need extra care, together we can bring the change to save these special infants, even impossible say I M POSSIBLE. Baby Arav will always be in our prayers Ankurji, god bless.
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Teera Fights SMA
Teera Fights SMA@TeeraFightsSma·
Let's make our voices louder. Please save our SMA babies. #SMABabiesDeserveBetter Please RT to join the fight against SMA. @PMOIndia @narendramodi @FsmaIndia @curesmaindia
Teera Fights SMA@TeeraFightsSma

Another life lost to this #SMA. So sorry for your loss, baby Aarav's family. Not every family has enough time to fundraise for their baby's life. Govt. needs to step in. #Zolgensma #Risdiplam #Spinraza available before more babies die avoidable deaths. #SMABabiesDeserveBetter

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Keşfet

@VasundharaTankh @VTankha @rarediseaseday @HospitalHinduja @narendramodi @Dev_Fadnavis @curesmaindia @SonuSood