ALowerhouse retweetledi
I have a sweet kitty who needs some extra care this year. Any help you can give would be greatly appreciated 💜 Will post updates, cat photos and vids at ko-fi.com/nickthecat
English
ALowerhouse
3.4K posts
ALowerhouse
@VertigoGrl
An unintentional collector of an alphabet soup of chronic illnesses #MECFS #EDS #MCAS #POTS. Pronouns: she/her
Katılım Mayıs 2015
222 Takip Edilen89 Takipçiler
My fundraiser has stalled, everyone has forgotten me. Please stop your doomscrolling to help me avoid certain doom.
Leave a dot if you see this, its just a dot, it costs nothing 🙏
gofundme.com/frog2026
English
ALowerhouse retweetledi
Orthostatic intolerance is common in ME/CFS & Long COVID, yet many patients go undiagnosed for years.
Our latest blog explains:
• Tilt Table Tests
• Active Stand Tests
• NASA Lean Tests
…and why accessible testing matters.
Read more: bit.ly/49ZOOgw
English
ALowerhouse retweetledi
Jenni needs our help to move to a place where she can afford to live and get help from a friend. Please join me and donating so she can pay for movers and a rental van to get herself there!
gofund.me/41b4e3212
English
ALowerhouse retweetledi
Sending #bluesunday love to the M.E community, appreciating your resilience, bravery, courage, and kindness. #teapartyforME
I’ve been sniffing chocolate digestive tea, and herbs (lemon balm, orange mint, apple mint, thyme, rosemary!) & FT’d my brother & his gf with my parents💙
English
ALowerhouse retweetledi
ME/CFS affects ~3.3 million Americans. 75% become too disabled to work or attend school.
Patients report among the lowest quality of life of any illness studied — yet NIH research funding amounts to roughly $4 per patient/year and there are 0 FDA-approved treatments.
This is a profound public health failure.
We urgently need:
• Major NIH funding increases proportional to disease burden (~500m/year)
@NIH @Surgeon_General @MEActNet
#mecfs #longCOVID
English
ALowerhouse retweetledi
Wasn’t well enough to organise or do anything for #BlueSunday2026 so Mum made us a Lemon and Blueberry loaf cake and I am enjoying in bed. Will be donating to @MEResearchUK this year. #TeaPartyForME2026 Thanks to Anna who gives us a bright day to look forward to every year.
Algatocín, España 🇪🇸 English
ALowerhouse retweetledi
In Kruger National Park, South Africa, veteran ranger Sipho Nkosi suffered a heart attack while on solo patrol. His vehicle was found empty, and search teams began looking for him.
What the park’s remote trail cameras revealed broke the hearts of everyone who saw the footage.
An old bull elephant — known to rangers as “Mnumzane” (Zulu for “Sir”) — had found Sipho’s body. For three full days and nights, the elephant refused to leave. He stood guard, gently touching the ranger with his trunk, chasing away hyenas and jackals that came too close, and even covering parts of the body with branches and leaves.
On the third night, the elephant was still there — visibly grieving, swaying slowly beside his fallen friend. Only when the full recovery team arrived with vehicles did Mnumzane finally step back, watching solemnly as they carried Sipho away.
Park officials later confirmed that Sipho had rescued this same elephant as a calf years earlier after poachers killed his mother. The elephant had never forgotten.
One colleague who viewed the footage whispered:
“He didn’t come to say goodbye. He came to make sure no one disrespected his brother.”
Mnumzane still visits the exact spot regularly. Rangers now leave fresh water and fruit there in honor of both.
English
ALowerhouse retweetledi
Reminder: Long COVID's disability & suffering will be the pandemic's most devastating long-term global legacy. Neither GBD supporters nor critics anticipated its scale or included it in their policy calculus -and “let er rip” strategies prioritizing widespread exposure clearly worsen the toll. Millions affected, with real costs in lives and productivity (on top of 20 million direct deaths globally, which we should never forget or minimize). nature.com/articles/s4385…
English
ALowerhouse retweetledi
@IrishMECFSAssoc 2/
On Friday I posted how my mum decorated the table for #blueSunday.
Here's today's spread.
We are doing it in aid of @IrishMECFSAssociation
idonate.ie/fundraiser/Blu…
but other worthy charities other worthy charities are listed here
the-slow-lane.com/donation-pages )
#BlueSunday2026
English
ALowerhouse retweetledi
Its #SUNday, so let's try a #CommunityCare thread. Drop your #MutualAid requests & #Crowdfunding links in *this* thread. If life's treating you well, please help someone in need by liking, sharing, and donating if able.
I need your help to do these threads 🙏 Click "more" ⤵️
Froglet is a disabled demi gal in Texas living with Long Covid and recently re-housed after six long years in a tent. They need help to pay rent, refill medications, and buy food & necessities.
👤about.me/froglet80
💸gofundme.com/frog2026
🎁amazon.com/hz/wishlist/ls…
☕ko-fi.com/froglet80
🅿️paypal.me/froglet80
💲cash.app/froglet80
💳venmo.com/u/froglet80
Froglet 🐸@froglet80
Froglet's Mutual Aid Boosting Guidelines 5/17/2026 For those posting requests: 1. do not message me. these are about to be instant blocks. i do not boost from dm's. 2. do not include me in long lists of tags. in fact just do not use long lists of tags. it hurts everyone by getting us all shadowbanned. 3. Do not share graphic images, nudity, or pictures showing children's faces. There are issues of safety and consent involved. 4. Do not tell me to look for your pinned post and boost it. In the same number of characters or less you could have just dropped the link; this is not a scavenger hunt. 5. Do not drop your fundraiser more than 3 times per day in my threads - I did not want to limit this & feel this is still lenient but a few were flooding them with the same link every half hour and its just rude so here we are. 6. Do not comment, do not follow, and do not even bother to share my posts if you are spouting MAGA or other hate anywhere online that I can see it, this is non-negotiable. 7. Do not post images without alt txt, and refrain from using overly flashy/blinky images. This is an accessibility issue. 8. Do not send me, or anyone else you don't know IRL, requests for payments thru cashapp, paypal, venmo, etc. Its rude, intrusive, and annoying. 9. Do not post here if you are roo lazy to fill out your bio and put some kind of image on your profile. Blank profiles are usually bots and will be blocked. 10. Do not post anything in my threads that was written, created, edited, or translated using LLM's (colloquially know as AI). They are unethical on multiple levels and I will not support their use. For the helpers out there: 1. I cannot verify every request. Research and vett according to your preferences before donating. 2. Please refrain from social work, respectability politics, or accusations on the timeline. Not my monkeys, not my circus - full stop. 3. Please know that likes, shares, quotes, and comments (especially those with more than 10 words and an image) are just as helpful as donations and we appreciate everything that you do. 4. If you run mutual aid boosting threads also, please DO dm them to me so I can be sure and share in return.
English
ALowerhouse retweetledi
Blue Sunday ,The Tea Party for M.E., is tomorrow - May 17, 2026! Everyone is invited!
A huge thank you to Anna Redshaw for creating this event.
More info: the-slow-lane.com/blue-sunday-20…
@meactionNC invites everyone at 1 pm. meaction.net/event-details/…
#BlueSunday202 #TeaPartyForME2026
English
ALowerhouse retweetledi
This is an emergency!
my phone is going to go off if I don't pay it by midnight ($50) and so is the wifi of the folks I live with ($40 still needed) and they work from home.
☕ko-fi.com/froglet80
🅿️paypal.me/froglet80
💲cash.app/froglet80
💳venmo.com/u/froglet80
GIF
English
ALowerhouse retweetledi
#MEAwarenessMonth #pwme #myalgicE #MECFS #millionsmissing #severeME #photophobia #hyperacusis #POTS #art2cureME #canyouseeMEnow #balletdancer #zorgbetervoorME #chronicillness #science
Anil van der Zee ©@AnilvanderZee
Wow, this work is incredible!! I haven't been able to read everything yet, but it's already an emotional roller-coaster. Make sure to check out the beautiful, emotional and intimate art works!! aquietstorm.me/myalgic-enceph… #pwme #myalgicE #millionsmissing #severeME #art2cureME
QME
ALowerhouse retweetledi
MILLIONSMISSING COPENHAGEN 12. MAJ 2026!
❤️❤️❤️
ME Foreningen er netop nu tilstede på Gammeltorv ved Strøget i København for at markere den internationale ME-dag.
❤️❤️❤️
Tomme sko symboliserer ME-ramte, der pga sygdom mangler ude i livet.
❤️❤️❤️
#mecfs
Dansk
ALowerhouse retweetledi
Today is ME/CFS Awareness Day.
Research suggests that around 1 in 4 people with hEDS or HSD also has myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Many more are still waiting for a diagnosis.
English
ALowerhouse retweetledi
Today is ME Awareness Day. We’re furious about the reality of life with this illness. ME/CFS is serious, a complex disease leaving 3/4 of victims disabled, yet patients are not recognized as “medically frail."
TY @NC_Governor @JoshStein_ & Raleigh Mayor Janet Cowell for...
English
ALowerhouse retweetledi
We showed up in front the U.S. Department of Health and Human Services today, joined by Dr. Stephanie Haridopolos, Principal Deputy Assistant Secretary for Health - Policy and Chief of Staff/Senior Advisor to Office of the Surgeon General.
#MillionsMissing #FrailAndFurious
English
ALowerhouse retweetledi
We need help! There is SO MUCH SUFFERING and so little research funding. We are losing patients to suicide because they lose hope.
Whitney Dafoe@DafoeWhitney
Please comment, share and tag healthy peeps who might donate 💙💙💙
English