Wendy Sinclair

@CMerandi Why is claustrophobia an exclusion. I’m claustrophobic and I just had an MRI safely yesterday and I’ve had multiple. I take medicine for the procedure-an easy solution. Why exclude for that? The radiologist told me most people are claustrophobic in an MRI machine.

Omg It’s probably best if I don’t know how evil Stanford Pain $9 million paid to bad actors

@ACSHorg @StanfordPain @NIHPainResearch Why is claustrophobia an exclusion. I’m claustrophobic and I just had an MRI safely yesterday and I’ve had multiple. I take medicine for the procedure-an easy solution. Why exclude for that? The radiologist told me most people are claustrophobic in an MRI machine.

@StanfordPain you’re the worst pain researchers ever. You’ve been given 9 million from @NIHPainResearch for your Loving Kindness Meditation pain study that excludes premenopausal women, anyone who has psychotherapy, anyone with a heart or brain condition, anyone taking painful and anxiety medication, anyone with comorbid pain syndrome. You know your study will be implemented on the every person you exclude. It’s downright unethical. There is nothing loving or kind about your deeply troubling exclusion criteria.

I could use your help with my fundraiser on GoFundMe. Please share, support, or donate—every small action counts. gofund.me/97765a60

I’m so sorry to hear of her suicide due to her chronic pain, which is sadly not unusual. There are FD-approved medications that relive suffering, but many find it difficult to access them now. (I’m not saying this is the case in her specific situation, but that suffering can be treated and mitigated if we have the will to do so. I believe every person has an innate right to have their pain treated.)

I just published Oregonians in Pain Deserve to be Heard medium.com/p/oregonians-i…

Question: what states have you seen improving pain care since the 2016 CDC Fallout, and why.

There are 15 recent studies showing force tapers lead to harm thedoctorpatientforum.com/resources/dpf-…

Studies out proving force tapering #ChronicPain pts off #painmedicine causes HARM. R these clinicians aware & want to keep killing us, or do we need to send them the studies & hope 4 change? Seems only care abt the #DEA lic & #CDC GLs. #PainCareCrisis

Oregon’s Medicaid does not currently have EDS/ hEDS/ HSD as a recognized or covered condition on OHP. Let’s change that! Long overdue! You can help Oregon’s Zebras by sending in a short comment, stating you support option 2! It’s time. Sept 13th 8am PST is deadline.

The authors' conclusion in this @PAINthejournal article is listed below (see screen capture). A reasonable reader of their study would conclude more simply that consumption of pain medications offers pain relief, thereby encouraging its sustained use, which also relieves pain-associated cognitive and emotional distress. Anyone who has suffered from severe pain understands that it can impair one's ability to function cognitively and negatively affects one's mood or emotional state. But these authors have chosen to frame that ASSOCIATION in a way that WRONGLY IMPLIES CAUSATION by pain medications!! They are GASLIGHTING patients who use pain medications as suffering from mental health issues, rather than acknowledging that patient take those medications to reduce chronic pain (which - due to simple pharmacokinetics - require repeated dosing to control a long-lasting symptom, in this case pain). In other words, these authors are saying chronic pain is a mental illness. Not only is that assertion methodologically unsound based on their study design, but it is also ethically irresponsible and reprehensible.

So beautifully summarized and stated. Intractable Pain is a hostage taker: we ought to be praising everyone who endures it, day after day, with whatever means is necessary. It is definitely one of those situations where “lived experience” is necessary to hold strong opinions.

The anti-opioid mindset has metastasized to include other scheduled drugs. That's why horrible things like this can happen. 'How Government, Medicine, and Doctors Failed A Dying Old Man' acsh.org/news/2024/06/1…

In the summer of 2023, a study from the Indiana University School of Medicine was published. It discussed a new phenomenon in patients with Ehlers-Danlos syndrome (EDS). clinician-associated trauma. sciencedirect.com/science/articl…

Can someone tell me why this continues to happen when the vast majority of addiction starts before the age of 25? Why are we torturing elderly people? Who is this helping exactly?

Pain is an everybody issue. #Pride #LivingWithPain #ChronicPain

Dear @latimes Editors: The next time you publish an OPINION about opioids, please go the additional step of asking your commenters to come up with some facts to support their view to make sure it is accurate. Yes, prescribing the right amount of pain medication postoperatively is desirable and encouraging patients to safeguard their medications and dispose of excess pills they do not use would be an improvement. But opioid prescribing no longer drives the #OverdoseCrisis (see graphs below). Lazily embracing the trope that opioid over-prescribing drives opioid overdose deaths not only stigmatizes patients with #SevereChronicPain, it encourages over-zealous dose reductions that increase patients' risk of suicide and overdose from illicit alternatives. (See, for example, Oliva EM, Bowe T, Manhapra A, Kertesz S, Hah JM, Henderson P, Robinson A, Paik M, Sandbrink F, Gordon AJ, Trafton JA. Associations between stopping prescriptions for opioids, length of opioid treatment, and overdose or suicide deaths in US veterans: observational evaluation. BMJ. 2020 Mar 4;368:m283. doi: 10.1136/bmj.m283. PMID: 32131996; PMCID: PMC7249243. observational evaluation. BMJ. 2020 Mar 4;368:m283. doi: 10.1136/bmj.m283. PMID: 32131996; PMCID: PMC7249243). Opinion: Surgeons give patients too many opioids. A few simple steps could curb excess prescribing latimes.com/opinion/story/…

6 yrs ago & the first wk of getting on “Twitter” X, Andrew Kolodny blocked me. It had been 1 wk on & looked at his acct, said “blocked”. A day I recall realizing this man had a vendetta against people for 1) having pain conditions. 2) who use their voice to advocate human rights.

It’s sad all the articles written by National Pain Report are gone, covering the Oregon HERC force taper policy. It was an excellent diary of events. Incredible advocacy by thousands.

CDC Admitted Their Guidelines Were Not Based on Evidence youtu.be/qjaWa-oCjC4?si… via @YouTube