ALS QUEEN ♿️

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ALS QUEEN ♿️

ALS QUEEN ♿️

@YaChristle

#Disabled paralyzed #AAPI person with #ALS (Lou Gehrig’s disease). I'm fine. I'm sending my love.

USA 🇺🇸 Katılım Şubat 2019
1K Takip Edilen871 Takipçiler
ALS QUEEN ♿️
ALS QUEEN ♿️@YaChristle·
@KPMemberService I need info & access to end-of-life supportive care options, including Pallitive and possible hospice stay. Kaiser Dr. R.E. Hanson has CANCELED 3 doctors appointments with me! Kaiser Dr. K. Youdim wants to REMOVE me from 24/7 nursing home care. I NEED HELP ASAP
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BrooklynDad_Defiant!☮️
BrooklynDad_Defiant!☮️@mmpadellan·
ONE BIG PUSH, TWEEPS: Let @realDonaldTrump know that it's NOT China Virus, it's #TrumpVirus. Retweet like crazy to make this trend all night and all day long, so it's the last thing and first thing he sees. LET'S DO THIS!
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Manuel Lopez
Manuel Lopez@hauling221·
Don’t even like opening mail
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ALS QUEEN ♿️
ALS QUEEN ♿️@YaChristle·
@MeidasTouch @Twitter I am a founding member of @MeidasTouch I need our organization’s help with Jim.Furash@AmeriHome.com & his heartless decision to foreclose and sell my Menifee, CA home during this #COVIDー19 Pandemic! I’m dying of #ALS & stuck in a nursing home room! Can anyone HELP?
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MeidasTouch
MeidasTouch@MeidasTouch·
Trump and his cronies are looting America.
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Shah Minokadeh, M.D.
Shah Minokadeh, M.D.@MinoShah·
#Nurown has FDA Fast Track Designation. @cylebo, with your repeated assertions that you care about #ALS patients & our loved ones, I have no doubt you have been moving forward with a "Rolling Review" of your BLA submission to speed up dying patient's access. Can you confirm?
Shah Minokadeh, M.D. tweet media
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Shah Minokadeh, M.D.
Shah Minokadeh, M.D.@MinoShah·
-#Nurown phase 3 trial will be complete October. -@BrainstormCell expecting top-line data December 2020. -Brainstorm will then submit a BLA -BLA "Priority review" from the @FDACBER can take up to 6 months. How many 1000s more will die needlessly in this time? @stevefda @cylebo
Shah Minokadeh, M.D. tweet mediaShah Minokadeh, M.D. tweet mediaShah Minokadeh, M.D. tweet media
BrainStorm@BrainstormCell

Thanks to the dedication of pALS, cALS and researchers, @BrainStormCell all participants in the Phase 3 investigational trial of #NurOwn have received all treatment doses. We are on schedule to release topline data this year. $BCLI #ALSstateofmind ir.brainstorm-cell.com/news-releases/…

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Grace Meng
Grace Meng@Grace4NY·
.@realDonaldTrump, take it from someone from the epicenter of the epicenter: there is no learning to "accept" this. We will feel the pain of these losses for the rest of our lives, and we'll never forget that so much of this was preventable.
“Mark Berman”@markberman

"White House officials also hope Americans will grow numb to the escalating death toll and learn to accept tens of thousands of new cases a day, according to three people familiar with the White House’s thinking" washingtonpost.com/politics/trump…

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Jimmy’s Famous Seafood
Jimmy’s Famous Seafood@JimmysSeafood·
⛳️ Tuesday, July 7th, we will be closing The Crab Garden at 7:00 PM, as we will host the cocktail reception for The 13th Annual Jimmy Minadakis Memorial Golf Tournament. 🦀 Carry-out will remain open until midnight. Trivia will take place on Thursday from 7-9. ❤️ Thank you!
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ALS QUEEN ♿️
ALS QUEEN ♿️@YaChristle·
@NotSoVanilla THANK YOU Angelina! It’s CRIMINAL that PoC are excluded from Clinical Trials! Please please tweet more often!
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Angelina Fanous
Angelina Fanous@NotSoVanilla·
A lazy statement from the ALS Association about race that doesn't actually address major problems: the exclusion of PoC in clinical trials or how this expensive-ass disease has made people homeless. Statement doesn't even say when they plan on hiring a more diverse staff.
The ALS Association@alsassociation

We believe that systemic racism has a direct effect on the lives of many within the #ALS community. We can & must do more to erase the disparities that exist for people with ALS of different races, ethnicities, and socio-economic circumstances. Read more: bit.ly/2YBKT4i

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Joe Biden
Joe Biden@JoeBiden·
With COVID-19 surging across the nation, Donald Trump should be doing everything in his power to increase access to testing. Instead, he's doing the opposite. It's despicable.
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Sandy Morris
Sandy Morris@sandymorris333·
Please read the thread. Please understand the difference between being a clinical trial participant and being a part of an EAP. Your awareness and education will help move us in the right direction, with urgency. #PatientCentricTrialDesign #PACTD
Brian Wallach@bsw5020

In case you missed this last night, if you are at all involved in the fight against ALS please take 5 minutes to read👇release today. Everyone. Including you @alsassociation. The more you know about EAPs, the more you understand their importance in this fight.

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Stand Up America
Stand Up America@StandUpAmerica·
Retweet if you want to see Trump’s tax returns.
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ICT
ICT@IndianCountry·
BREAKING NEWS. US District Court orders Dakota Access pipeline to be shut down and be emptied within 30 days because of the "seriousness" of NEPA error. (Developing story)
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Angelina Fanous
Angelina Fanous@NotSoVanilla·
Sext: I can walk with assistance
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Keşfet

@twitter @KPMemberService @aboutKP @Twitter @realDonaldTrump @Ml1969 @EvanCampa @FinishALS