Adrian Gropper

@JoshCMandel These non-commercial tools put a lot of responsibility on the patient to do the prompt engineering around SMART on FHIR exports. This risks aggravating disparities for populations already struggling with access to primary care x.com/zakkohane/stat… This needs community input.

Love this! In a similar vein, I put together ctrl-c.fhir.me last month for a sort of "decomposed demo" at the Madison Literary Society. This tool just: 1. Connects to your SMART on FHIR endpoint 2. Downloads all the clinical notes to your browser (optionally filtered by keyword) 3. Copies all matching notes to your clipboard Then you can paste into your LLM chat interface of choice for explanations, summarization, sense making, etc.

On the same day @nytimes op-ed predicts @JetBlue getting worse, my incoming flight sat on the ground, full, for an hour and 20 minutes before getting to the gate at PHX. Delays are one thing but this seems positively #cruel.

@BrianRoemmele How close are we to being able to add training with your own private health and social data and share only the insights to the global open source medicine commons? trustee.substack.com/p/medical-ai-w… @PatientPrivacy @TrusteeHIE

I am very excited to announce I have been successful in installing and operating a full ChatGPT knowledge set and interface fully trained on my local computer and it needs no Internet once installed. There are no editors and there is no censorship. I am using Alpaca (crfm.stanford.edu/2023/03/13/alp…) from Stanford and Dalai Lama. The training model cost about $530 to build locally yet has the abilities of GPT 3.5. The software is free and open source and I am working on preconfigured packages for anyone to have local training and access to a LLM GPT AI. This model is now in a live connect with all of my other AI systems and the results have been absolutely stunning. I will be writing more about this soon. But today know, you will own your own AI and it will only answer to you.

Do we really want to privatize and make secret medical science in this way? mobihealthnews.com/news/artera-la…

Trustee Community Newsletter: Medical AI Will Not Be Like ChatGPT trustee.substack.com/p/medical-ai-w…

@bewestisdoing @TrusteeHIE @PatientPrivacy @FlemingProtocol Longitudinal patient-centered health records are essential for clinical, research, and public health. Patients get to set priority across the three use-cases and exercise control via trustees and communities they choose. Premature optimization for one use-case is unnecessary.

@agropper @TrusteeHIE @PatientPrivacy These issues have nearly all my attention right now. Have you met @FlemingProtocol ? Working on this kind of patient co op that can serve an international diabetes community.

Introducing a new patient community paradigm trustee.substack.com/p/introducing-… @TrusteeHIE @PatientPrivacy

What do healthcare consumers want? on Trustee Community Newsletter trustee.substack.com/p/what-do-heal…

GNAP session at the IETF in London meets some very hasty photoshop work this morning. #IETF #IETF115

@EdiePargh @TrusteeHIE

Why a decentralized health records approach is the way out of today’s byzantine healthcare system open.substack.com/pub/trustee/p/…

Interesting strategic perspective on #privacy and #blockchain regulations to promote #decentralization. mitre.brandlive.com/grand-challeng… @TrusteeHIE

@bewestisdoing @sendgoodcheers There’s network amplification that drives platform formation and their monetization of inferences.

@sendgoodcheers @agropper RE anti-trust scrutiny, Adrian's proposing that data-holders, data-brokers and data-providers shouldn't be able to construct monopolies precisely because they wind up abusing data rights of others. Lack of interoperability is one of the symptoms; the outcomes.

Excellent update by @caseymross statnews.com/2022/10/06/hea… It's 18 years since NHIN. Now we have TEFCA to wait for. Our sick care system focuses on business over patients. @PatientPrivacy @TrusteeHIE

We're launching the Trustee Community Newsletter with a post by our own @EdiePargh to set the stage. Please subscribe and share. trustee.substack.com/p/why-a-patien… @PatientPrivacy @TrusteeHIE

After self-hosting my email for twenty-three years I have thrown in the towel 😩 Email is now an oligopoly, a service gatekept by a few big companies which does not follow the principles of net neutrality.

@Sheldrake @csageland @hiproj Forced association with and surveillance by powerful global platforms for a large part of what we do every day is a human rights violation. Here's one current effort to improve Internet standards from the perspective of human rights #section-13" target="_blank" rel="nofollow noopener">…re-protocol-editors-draft.netlify.app/draft-ietf-gna…

@csageland @agropper @hiproj So questions relating to mediation forms, including the sources of meaning (values) and motivations informing the interfacial affordances? A fascinating field of enquiry!

A questions found in the systemic design community, but a great question - any of youz want to chime in? @Sheldrake @agropper it's very @hiproj leaning, esp the second tweet, below this: