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Carol L. Binks
18.9K posts
Carol L. Binks
@carolbinks
Healing myself. Supporting others with neuroendocrine/immune system illness commonly known as #ME. Sharing research. Denouncing unscientific claptrap. #MCAS
Katılım Ekim 2012
1.8K Takip Edilen2.7K Takipçiler
Excellent! Thank you, @PhysiosForME …
Physios For ME@PhysiosForME
This #MEawarenessDay we are delighted to have an article published in in the Chartered Society of Physiotherapy's magazine "Frontline", which goes out to all chartered physiotherapists in the UK (that's over 67,000!) csp.org.uk/frontline/arti…
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Carol L. Binks retweetledi
𝗡𝗼 𝘁𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁, 𝗻𝗼 𝘄𝗮𝗿𝗱, 𝗻𝗼 𝗡𝗛𝗦 𝘀𝗲𝗿𝘃𝗶𝗰𝗲. 𝗧𝗵𝗲 𝗺𝗼𝘀𝘁 𝘀𝗲𝘃𝗲𝗿𝗲𝗹𝘆 𝗶𝗹𝗹 𝗽𝗲𝗼𝗽𝗹𝗲 𝘄𝗶𝘁𝗵 𝗠𝗘 𝗵𝗮𝘃𝗲 𝗻𝗼𝘄𝗵𝗲𝗿𝗲 𝘁𝗼 𝗴𝗼. #MillionsMissing 2026 read our article & our templates to contact MP shorturl.at/uSfz6.
#VerySevereME
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Carol L. Binks retweetledi
"The third misconception is that people don't get #LongCovid anymore... we still see plenty of people who develop long COVID after their second, third, fourth, fifth, episode of COVID." — @MichaelPelusoMD menshealth.com/health/a711309…
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Carol L. Binks retweetledi
Berkeley’s Crowdfunding Autumn 2026 in support of Dr. David Tuller’s project “Trial by Error” has reached 86% of its target. One day to go! These are the final six months of Dr. Tuller’s project. Let’s give him a push over the finishing line! #MECFS crowdfund.berkeley.edu/project/49720
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Carol L. Binks retweetledi
Researchers have published a study investigating the experiences of people with ME/CFS, using information from memorial records—documents created to honour and preserve details about a deceased person. Read more about what they found here: bit.ly/3QJdYcP
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Carol L. Binks retweetledi
Exercise is not beneficial for everyone. Graded exercise therapy was the dominant treatment for #MECFS for years, but NICE withdrew it in 2021 after finding no reliable evidence it was effective, the research was flawed, and there was considerable evidence of harm.
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Carol L. Binks retweetledi
Carol L. Binks retweetledi
The response to two Member’s questions about ME in the House was pathetic.
‘integrated care boards (ICBs) should continue to commission appropriate services for patients with very severe #ME/CFS as needed.’ Sharon Hodgson MP
There are no appropriate services, none. Disgusting!
#MEAction Network UK@MEActNetUK
𝗡𝗼 𝘁𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁, 𝗻𝗼 𝘄𝗮𝗿𝗱, 𝗻𝗼 𝗡𝗛𝗦 𝘀𝗲𝗿𝘃𝗶𝗰𝗲. 𝗧𝗵𝗲 𝗺𝗼𝘀𝘁 𝘀𝗲𝘃𝗲𝗿𝗲𝗹𝘆 𝗶𝗹𝗹 𝗽𝗲𝗼𝗽𝗹𝗲 𝘄𝗶𝘁𝗵 𝗠𝗘 𝗵𝗮𝘃𝗲 𝗻𝗼𝘄𝗵𝗲𝗿𝗲 𝘁𝗼 𝗴𝗼. #MillionsMissing 2026 read our article & our templates to contact MP shorturl.at/uSfz6. #VerySevereME
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Carol L. Binks retweetledi
More than 17,000 people have viewed this post. So far, Berkeley's crowdfunding campaign for my project, Trial By Error, has received 566 donations. If you'd like to help get that just a bit closer to 17,000 (ha!!!), here's the link: crowdfund.berkeley.edu/project/49720
davidtuller@davidtuller1
A Lancet journal, eClinicalMedicine, published a flawed. meta-analysis that promoted exercise interventions for Long COVID. The journal has published my letter rebutting this claim: virology.ws/2026/04/23/tri…
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Carol L. Binks retweetledi
Carol L. Binks retweetledi
ME Awareness Week is approaching. I don't know that there's anything I can say that I haven't said before. A lot of progress *has* been made but acceptance and understanding by the whole medical profession and effective treatments for all patients are still a long way off. #MECFS
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Carol L. Binks retweetledi
This is why @davidtuller1's work matters so much,
he's spent 10+ years confronting those who've inflicted so much harm on #pwME & #LongCovid & doing the essential work which others wouldn't do.
Please donate if you can & share
crowdfund.berkeley.edu/project/49720
Adam@ABrokenBattery
I’ve just donated to @DavidTuller1’s crowdfunding campaign again. I really hope his work investigating #MECFS, #LongCovid can continue. These highlights sum it up… Everything they’ve done for 30 years is not only “bad science” it’s actually been “really harmful” to people.
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Carol L. Binks retweetledi
For ten years, I've been pushing back against problematic research suggesting that ME, ME/CFS, Long COVID and related illnesses are psyhosomatic, "functional," etc. I'm continuing the project through December. If you'd like to help out: crowdfund.berkeley.edu/project/49720
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Carol L. Binks retweetledi
The post below has viewed more than 15,000 times. The current crowdfunder for Berkeley's Trial By Error project has received 428 donations. If you'd like to contribute, here's the link:
crowdfund.berkeley.edu/project/49720
davidtuller@davidtuller1
A Lancet journal, eClinicalMedicine, published a flawed. meta-analysis that promoted exercise interventions for Long COVID. The journal has published my letter rebutting this claim: virology.ws/2026/04/23/tri…
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Carol L. Binks retweetledi
My neighbour Barbara aged 101 saw the programme on Sunday and was absolutely shocked at the number of people suffering from #ME. She knew me even before I became ill but it hadn’t really sunk in. She has most generously sent me a donation to pass on. I’m incredibly moved.
Adam@ABrokenBattery
Watch the full program BBC Lifeline for Action for ME (9 mins) bbc.co.uk/iplayer/episod… Lifeline donation page donationportal.co.uk/lifeline/appea…
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Carol L. Binks retweetledi
This is an incredible $10M donation to our PolyBio Long COVID Cure Initiative (LCCI) Program. Funds are from the Park-Pagliuca Fund: a philanthropic collaboration between the families of Todd Park & Steve Pagliuca, each of whom have family members impacted by Long COVID
PolyBio@polybioRF
Breaking: Park-Pagliuca Fund Donates $10 Million to PolyBio Long COVID Cure Initiative PolyBio Research Foundation today announced a $10M donation to support the Long COVID Cure Initiative (LCCI), a program designed to deliver treatments to millions of Long COVID patients by translating key academic findings into real-world diagnostic tests, faster and more targeted clinical trials, and accessible, patient-ready therapies. prnewswire.com/news-releases/…
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It cannot be overstated how important the work of David Tuller, DrPH, has been, and continues to be, in calling out bad science from those who *still* try to psychologise and minimise the impact of ME on millions of lives. His work remains essential. Please donate if you can!
davidtuller@davidtuller1
Almost 10,000 people have seen this post, but only 304 have donated so far to Berkeley's crowdfunder for Trial By Error. Here's how to support the project through the end of the year: crowdfund.berkeley.edu/project/49720
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Carol L. Binks retweetledi
My brother raised over £6,200 for @MEResearchUK running the London marathon today (and did it in a ridiculously fast time to boot, sometimes I wonder how we can be related 😅) justgiving.com/page/joe-welto…
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Carol L. Binks retweetledi
Do consider donating to @davidtuller1 This was a wonderful rebuttal to the terrible PACE trial, just one of many ways he has supported #ME patients over the years. Link to the donation in the comments.
Adam@ABrokenBattery
Clip of David Tuller tearing up the PACE trial at the Invest in ME conference in 2017. David has been calling out bad #MECFS research for nearly a decade & his work is more important than ever. I've just donated to his crowdfunding campaign - please consider doing so if you can
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