furkhanda haxton

@tobytarrant you lucky so and so!! 😂 Does @Pipskin know about this?!

Attending the EMEA HAEi conference in Rome #HAEI #HAEIEMEA25 What an amazing coming together of patients, carers, pharmas and medical personnel.

Physician Associates should be banned from diagnosing untriaged patients, review says independent.co.uk/news/health/nh…

In Plain Sight?: Invisible Disabilities and Bindweed Entanglements thepolyphony.org/2025/06/05/in-… via @the_polyphony

@BenOxlade1 OMG. He's changed so much. So lovely to see him blooming x

Yesterday was Rufus' birthday party (his birthday being in a few weeks) and he and Henry had such a great time at our favourite play cafe. They went all out and made it such a great party, and of course, it had to be bluey themed!

@ArnoldClark @thekiltwalk Did I win the car? I'm free tomorrow if you want to deliver it to me 😂

@thekiltwalk 💙

A huge thank you to our headline sponsor @ArnoldClark for their incredible support. Together, we’re making a real difference! ❤️ #KiltwalkGlagsow #KiltwalkKindness

#kiltwalk2025 when do the justgiving accounts close for sponsorship?

@thekiltwalk only in Glasgow would you see men swigging buckfast or vodka from the glass bottles, whilst doing a sponsored #kiltwalk2025

@RadioX please wish all the Glasgow Kiltwalk participants good luck for today and tomorrow. I'm doing the big stroll today 14.4 miles. Not the best of weather. Fern in Glasgow.

@infosec_fox Inside my pack of incontinence pads!!

@currys I went into the Hamilton Palace Grounds store today. 4-5 staff standing at front of store yapping. No one bothered attending to me whilst I was actively looking at the washer dryers upstairs. Walked out and will take my business to a store that will attend to me.

EC approves CSL’s Andembry (garadacimab) for the prevention of recurrent attacks of HAE haei.org/ec-approves-cs…

@JakubZN @doctor_oxford I want to have the choice. I don't want to be a burden. The NHS is on its knees. Palliative care is not available to everyone. It should be but it's not. Effective pain relief is not available to everyone no matter that it should be. It's the reality.

@fur_khanda @doctor_oxford Well, being referred to euthanasia service wouldn't be quite ideal in your case, would it? I am only trying to say it must not be a choice between pain and death in 21st century in a developed country.

Important corrective to the distorted narrative being pushed by Prue Leith et al that dying in Britain is a binary choice between 'unbearable pain' & assisted dying. The vast majority of deaths I see are simply not like this. If you have a terminal illness, please know this.

I'm fundraising for HAE UK. I'm going to do a 14mile Kiltwalk on 26th April 2025. Check out my @JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/page/furkhanda…

@PatrickMackle4 @nhs2tier Thank you.

.@PatientsAssoc Are you running patient focus groups to inform the Leng Review. If so how do patients get involved? Thank you.

@JakubZN @doctor_oxford In an ideal world pain shouldn't be happening but we don't live in an ideal world. A referral to a pain clinic years ago resulted in the Consultant telling me we wouldn't be discussing my pain meds/side effects but my lack of motivation!!

@fur_khanda @doctor_oxford Sure, although such situations will be rare if ever. Maybe a pain specialist could comment. Sure this could be a factor if pain is absolutely untrollable but my point is that shouldn't be happening if possible. Pain should be treated for everyone. Choice pain or AD is no choice.

@GeneInvesting Let me know how to contact you 👍

@fur_khanda Hi I’d love to chat with you about HAE

HAE UK just got paid! I raise free funds every time I shop online with @easyuk. It’s a simple way to make my Christmas shopping count - join me and you can help them raise even more: easyfundraising.org.uk/causes/haeuk/?…

@leicesterliz Occupational Health say I'm doing all I can, you'll accept it rather than ignore them? You're happy for me to come to work high on morphine? You'll fit work round my illness? If so...sign me up now!!

@leicesterliz Great!! So I get time off for gp & hospital appts? A written warning won't be given after 2 bouts of sickness absence? Termination on the 3rd? You won't put stress on me for 6 maths to improve my sickness absence as stress is a major trigger for my hereditary condition? Even if

For too long, sick and disabled people have told they can't work, denied support and locked out of jobs. We will deploy 1,000 work coaches to provide proper support to people to unlock the benefits of work, boost living standards, & grow the economy. gov.uk/government/new…