Jet

@TheNerveShow Her health should remain private, asking how many surgeons etc is nobody’s business but the POW. This is below the belt.

Kate Middleton's health battle and scrutiny over the secrecy of The Palace. Watch below and download the full episode: podcasts.apple.com/us/podcast/the…

@ABrokenBattery @DrOscarDuke What makes me cross is that the presenters used the correct ME term and then the Doctor goes on and on about CFS - it makes it feel a bit deliberate- I really hope it wasn’t but frustrating that he didn’t do his homework!

BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project. Unfortunately @DrOscarDuke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.

This is a brilliant description of what has happened with ME.

@finnishgunners Brilliant

Brilliant. Credit to themsbloke. Nice to see someone with another illness advocate for ME.

@PhysiosForME Thank you

This #MEawarenessDay we are delighted to have an article published in in the Chartered Society of Physiotherapy's magazine "Frontline", which goes out to all chartered physiotherapists in the UK (that's over 67,000!) csp.org.uk/frontline/arti…

@mayordcsdc @Dan_Wyke thank you

Tonight, Council buildings will light up blue in support of International ME Awareness Day💙 This is an opportunity to stand in solidarity with everyone living with Myalgic Encephalomyelitis (ME), as well as their families, friends and carers. #MEAwarenessDay #MeSupport

Please sign if you can, despite huge amounts of biological evidence, many Psychiatrists, the organisations that represent them, and those involved if the failed PACE trial at still pushing their dangerous agenda which has held back research.

@misspaulalondon Yes visited Rigby and Peller and M&S neither used tape but checked what size I was in. But they fitted very well - it’s not just measurements, it’s the different boob shapes and how they lie on the chest and bras all structured and fit differently.

M&S stops using tape measures for its bra fittings - and staff must size women by EYE. How utterly stupid! dailymail.com/news/article-1…

@XOQueenEsther Very well said!

Fuck off Prince Harry. You stood there and let your wife bully, lie, and smear your own family on a global stage while you nodded along like it was all justified. You sat through interviews, documentaries, book deals, and endless digs designed to humiliate the very people who protected you your entire life. And you didn’t just allow it, you participated in it. You took private family matters and turned them into public spectacle. You weaponised grief, twisted narratives and cashed in on it over and over again. While your grandparents were elderly, while your grandfather was in his final months, while your grandmother was still carrying out her duty, you chose to add pressure, stress, and public disgrace to her final years. And you have the audacity to leak a “discreet tribute” to polish your image after everything you’ve done. You helped make her final years harder than they ever needed to be. That’s the truth. No amount of quiet chapel visits wipes that away. And don’t even get started on the nickname. You took something deeply personal, something only a handful of people in her life ever used, and turned it into branding. Then had the nerve to push the story that she “approved” it, knowing full well the Palace had to step in and shut that down. That wasn’t honouring her. That was using her. So no, you don’t get to pretend now. You don’t get to act like she meant the world to you while your actions showed the exact opposite. So Harry, go rehearse the next PR stunt with your wife and Fuck. Right. Off! You don’t get to rewrite this now. People remember exactly what you did.

@CaroleBruce17 @cfs_jo @NickyProctor Yes very well done @NickyProctor you were so calm and and clear. Thank you

Congratulations to @NickyProctor who just spoke most honestly and eloquently on BBC 4’s Feedback about the recent episode of Radical where Amal Rajan interviewed Suzanne O’Sullivan about her book and didn’t challenge her appalling views on #LongCovid. Thank you so much Nicky.

@according2_taz Download audible or kindle edition?

FUMING! Amazon have said they cant deliver my book until Saturday!!! I have been waiting all morning. Sulking now. I could have ordered from somewhere else if they told me they were going to delay it.

@KSchnickelfritz @CaroleBruce17 🙏 thank you

@janejet07 @CaroleBruce17 x.com/kschnickelfrit…

Thanks to @KSchnickelfritz for all her hard work on providing a template for us to write to our MPs re Dr Alastair Miller providing a training course for Drs on #ME. I just received this from my MP who is also a GP. Success!

@ABrokenBattery @Dan_Wyke Good news, good to see Devon and Exeter stepping up and hopefully learning from their mistakes.

Update: Savannah self-discharged again and has been admitted to Royal Devon & Exeter which has a formal Severe ME pathway following the death of Maeve Boothby O’Neill. Pain relief has been increased and care is described as kind and compassionate. gofundme.com/f/severemergen…

@Dan_Wyke @wesstreeting I actually wonder when these Doctors will be prosecuted for withholding life saving treatment e.g feeding the patient regardless of what they think the cause of non eating is. Really think we need the ME charities to take hospital to court on Savannahs behalf

These are no longer isolated incidents. It's starting to feel like withholding nutrition from people with ME - and the very real risk this poses to patients' lives - has become commonplace in NHS hospitals. When will consultants be made to adhere to NICE guidelines? @wesstreeting

@MartinSLewis @KemiBadenoch Martin you are passionate on the subject and imho it was really good to see 2 people with opposing views discuss their views and also both be grown ups afterwards too. Things don’t always go to plan - @KemiBadenoch @MartinSLewis well done to both of you.

Pleased to say @KemiBadenoch has kindly invited me to go and meet her to discuss Student Loans later today. I'm looking forward to a useful policy discussion and thankful for the opportunity to make something positive come out of this, after an inauspicious start (by me). PS I have also requested to discuss Student Finance with the Chancellor (where the key focus is the unfair freeze on Plan 2 repayment thresholds coming next April)

@LBC Most companies do not want to train staff. Many jobs say graduate with 2-3years experience - I don’t consider that a graduate job. There are very few trainee/starter jobs out there. I didn’t go to uni but there were lots of opportunities learn/train - not now even with degree.

'I see university as a massive waste of three years.' Caller Izzy tells @NickFerarriLBC that she graduated for ‘no point’, as she and her friends are still struggling to get degree-related jobs five years on.

Save Savannah Victora-May - Prevent Another ME/CFS Tragedy - Sign the Petition! c.org/cYQGQmdn9S via @UKChange

Save Savannah Victora-May - Prevent Another ME/CFS Tragedy - Sign the Petition! c.org/yqk9SKmXcq via @UKChange

I’ve just donated - Please donate if you can, it seems the NHS is only going to change for ME patients if they are taken to court - #MECFS