Matt Rocheleau

What did I do to deserve this? My life and journey with ALS ctinsider.com/connecticut/ar… & timesunion.com/opinion/articl…

@ComCareALS @ALS_NM @LesTurnerALS @HopOnACure @ALSUnitedIL @ALSHF @ALSofGNY @ALSUnitedCT @iamalsorg @alsncchapter @ALSTDI @LiveLikeLou4 @MDAorg

@SenatorCollins @PattyMurray @TomColeOK04 @rosadelauro @HouseAppropsGOP @SenateApprops @AppropsDems @youralsnetwork @alsassociation @HerALSStory @AnswerALS @ALSUnitedRI @TeamGleason @ALSMidAtlantic @ALSGeorgia @alsone_official @ALSunitedOhio @End_The_Legacy @ALSAZ @ALSNorthwest

30 ALS orgs urge Congress to increase funding to fight ALS for people living today w. the incurable, fatal disease & those who will be diagnosed in the future, including military veterans who are at higher risk iamals.org/wp-content/upl… Click here to help: iamals.org/research-fundi…

So grateful for the generous support of my colleagues at @Hearst @insider_ct @timesunion ! About $15,000 raised for ALS causes in just the past few months hearst.com/-/meet-the-hea…

We are grieving the passing of Leah Stavenhagen, a true changemaker, I AM ALS community member, and founder of Her ALS Story. Leah’s legacy lives on in those she connected and the perceptions she shattered. We're grateful for her brilliance, her advocacy, and her heart.

We are heartbroken by the passing of our friend @RealEricDane, a fierce advocate, a generous spirit, and a true champion in the movement to end ALS. Eric used his platform not for attention, but for action. Read our full statement online: bit.ly/4axamAA

Thank you, Dr. Bedlack & I AM ALS advocate and volunteer Marvin Shaw, for walking us through the latest on promising ALS therapies! Tofersen is working well, but only for a few ALS patients. So we're pushing for progress to spread the hope. Full article @ bit.ly/ALShope

A bipartisan team of U.S. lawmakers has reintroduced the ALS Better Care Act, aimed at improving access to quality medical treatment for ALS. alsnewstoday.com/news/lawmakers…

Great news! The Senate just passed a bill that increases funding for ALS research! We’re not done yet. The House needs to pass this bill. Let’s show them how important ALS research is. Send them a message and share this action @ bit.ly/fundALS26

While acknowledging the hard work we've all done, let's hold space for those we lost to ALS. These are just a few of the deeply missed community members we've lost over the last year. Drop a "💙" below to honor a loved one that passed from ALS.

If this bill passes, we will secure a $45M INCREASE in ALS research funding! Contact your legislators now to tell them to vote YES for more money for ALS research! iamals.org/consolidated-a… @iamalsorg

Community—Congress just introduced the Consolidated Appropriations Act, and there's $313 million in ALS funding on the line. Voting starts TODAY. We need you. Push with us to protect and increase ALS funding at bit.ly/fundALS26

More people are getting diagnosed with ALS. That means more people will need treatment—soon. Help push for funding TODAY to make those treatments available → bit.ly/fundALS

Later this year, ACT for ALS is set to expire and with it YEARS of REAL momentum—funding, research, and promising treatments. That's why getting it reauthorized is SO important. Push with us TODAY @ bit.ly/fundALS

Caregivers carry WAY too much, all alone. The Credit for Caring Act would provide some financial support to lighten the load and help them balance their duties with work. Call your Senators TODAY to help pass it at bit.ly/credit4care

Too many military servicemembers are left paralyzed like this. Far more are killed by ALS than in combat, veterans are much more likely to develop this awful disease than civilians, and no one knows why. We need answers. #OperationEndALS operationendals.org @iamalsorg

Meriden 16-year-old arrested by ICE released after six months detained | Kevin was arrested along with his father during a routine check-in with U.S. Immigration and Customs Enforcement in June and had been held in Texas since ctinsider.com/news/article/c… by @joshua_eaton

Hartford church honors the region's homeless who died this year ctinsider.com/connecticut/ar… by @jacquelinerabe

For immigrants in CT and beyond, asylum often is the only hope. Critics say the system is ‘brutal.’ ctinsider.com/news/article/a… by @joshua_eaton

School district's ‘timeout’ boxes spark parent outrage, investigations timesunion.com/news/article/s… by @emiliemunson