April Rains

@mollyschreiber It’s awful when it adds pain first. Watch your potassium is my only suggestion (baked potatoes are my friend) and you probably already know that. The effects it has on my endocrine system are what I think it’s tied to. Wishing there was an alternative besides through.

Does anyone else get really awful muscle and joint pain (especially in the back and legs) when starting prednisone? I’d like to think I have a fairly high pain tolerance but this is really awful. #RA #Steroids

@mollyschreiber I didn’t even have a sore injection spot - zero recovery. One of the best things I’ve done.

Friends who had #Evusheld, any side effects or crappy feelings after? Just want to schedule my dose appropriately if I’ll need any recovery time. #ChronicIllness #Rheum #T1D #COVID19

@mollyschreiber My Rheumatologist has said get asap and I’m on board with that. I do wish we knew more when combined with our meds and immune systems but any chance I have to be vaccinated I’m for it. Good luck deciding!

Friends with a #compromised #immune system (whether due to disease, medication, or both)- which fits your thoughts on being vaccinated for #COVIDー19? Please share your reasons too, if comfortable (occupation, risk factors, allergies, etc.). #Rheum #autoimmune #vaccine

@mollyschreiber @amazon That seems to be their new answer just wait 1-2 days. Really dislike.

I order a lot (maybe more than I’d like to admit) from amazon and have noticed a steady decline in delivery & customer service. Yesterday my pkg was delivered, but not to me. The photo is not my home. But @amazon wants me to wait a day for it to arrive? Really frustrated #amazon

@mollyschreiber Weighted tape dispenser and one of the sliding paper cutters helps but it’s still rough and requires extra effort.

Alright friends- how does gift wrapping go for you? Any tips/tricks to make it easier with #RA? (Aside from bags or asking someone else 😂) #RheumatoidArthritis

@HurtBlogger I pay for Medicare, supplement plan, and drug plan but all combined together I’ve been surprised at how well I’m covered. Except for my biologic - that I thankfully qualify for through the drug company.

How the hell do people pay for health insurance?!?! (Says someone who’s been *lucky* enough to have it union covered for several years, till now) Trying to determine if Medicare will be enough for me... advice? Help? Resources?

@HurtBlogger @cvspharmacy Love my CVS pharmacist and team!

When your local @cvspharmacy pharmacist gets your Rxs going in advance of your sudden flight tomorrow AND gives you advice on getting out of your snowy neighborhood today - that’s just good care!

@HurtBlogger Best of luck! Finding the right doctor last is a full time job.

“I’m not wearing any makeup this morning because this doctor isn’t smart enough to read thru it.” Wish me luck with my fresh-outta-Med-school-by-the-book-&-ill-equipped-to-treat-chronic-patients primary care doc that I have to see for now till I can get into a more senior doc!

@HurtBlogger @ROADiD I love my RoadID!!

Just got my new @ROADiD in the mail and did a whole unboxing type thing in my stories on Instagram! Check it out if you’re interested! Spoiler alert: there’s a #medicalhack in there cause... #raredisease!

@HurtBlogger Exactly! Hugs to you too

@rains27 Ah yes, I know what you mean! And some ‘injury’ I experience I feel more acutely & some I feel not at all (such as two broken foot bones for 10 days that I ran miles on). Pain is a tricky beast... hugs to you

That being said... the pain has come back full bore. Now I’m interested in short circuiting my pain 🤔. If the brain/body never gets a break, imagine every other system that never gets a break. Proper pain mgmt IS good health care. Looking forward to trying new treatments...

@ATTCares Just documenting that you’re unable to expedite my refund of almost $600. 4/19 is when you’ll cut the check and then I have another 10 day wait on there for a refund approved on 2/19.

@rains27 We'd like to help - please DM us with more info so we can investigate. ^ATTCareTeam twitter.com/messages/compo…

@ATT why after billing me for 9 months on an account that was closed would it take more than 60 days after the credit was approved to receive a check? Plus NO one in your account rec department will even call me back.

@HurtBlogger Rest the rest will wait or go away.

@HurtBlogger Hoping they find some working solutions and you can escape for months at a time. Meanwhile hope you get your jello back soon!

@HurtBlogger I've read somewhere it is a drop in blood sugar. #nowifIcouldrememberwhere

@RheumerHasIt @RoadID Yes - it's easy to use, opens wide for the days my hands are stiff, and is very comfortable.

@RheumerHasIt @RoadID I love mine!! So much better than the other options.

@HurtBlogger Hoping you don't need them but totally feeling you on taking them.

@HurtBlogger It's bad-wiped out zero energy. Have they checked your adrenals? Mine didn't return so I go so low on steroids then to base hydrocortisone.