M. and S. Shaw

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M. and S. Shaw

M. and S. Shaw

@twoShaws

Person w/ severe #MyalgicEncephalomyelitis #MyalgicE (ME/cfs) #POTS #MCAS & her ME advocate spouse/caregiver. Before: Architect, software interaction designer.

United States Katılım Ekim 2015
3.1K Takip Edilen1.6K Takipçiler
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M. and S. Shaw
M. and S. Shaw@twoShaws·
Have you ever wondered what the difference is between post-exertional malaise (PEM) & post-exertional symptom exacerbation (PESE) in myalgic encephalomyelitis (M.E.)? @sunsopeningband explains it in a clear and elegant nutshell.
Todd Davenport@sunsopeningband

@rhymeswithvery @MelanieWeckert PESE = symptoms worsen with exertion, says nothing about latency between onset and stressor nor recovery period PEM = delayed symptoms after stressor, prolonged recovery PEM is an energy problem. Signs/symptoms also may coincide with dysfunction in a number of other systems.

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Dr Elaine Cox 🍃 💚 🍃🌽🥬🐦‍⬛🐌🇬🇧
Uncut grass keeps the ground at around 19.5°C Grass cut to 10 cm raises the ground temperature to about 24.5°C Bare ground in the middle of summer rises to over 40°C It's important to raise awareness #NoMowMay
Dr Elaine Cox 🍃 💚 🍃🌽🥬🐦‍⬛🐌🇬🇧 tweet media
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Lukas A.
Lukas A.@Amludude·
I have an air conditioner now. During the installation, I had to switch rooms, which was a huge challenge. Even just getting there with the wheelchair transport showed me once again how severely ill I am. Of course I got PEM afterward. But it was worth it. #MECFS
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Danny Deraney
Danny Deraney@DannyDeraney·
Every year, I share this video of French caretakers who take sand from Omaha Beach in Normandy, and scrub them into the letters to give them the gold coloring. They do this for all 9,386 US soldiers who died. France also gave us this land as American soil. #MemorialDayWeekend
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alexandria masse
alexandria masse@MasseAlexandria·
crocheted my friends daughter a very hungry caterpillar for her 1st birthday 🐛🧁🍓
alexandria masse tweet media
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Adam
Adam@ABrokenBattery·
“They’ve had their lives completely demolished by this illness.” Millions are living with #LongCovid while society has moved on. Former Team GB rower @oonagh_cousins developed #MECFS following Covid and had to retire.
Adam@ABrokenBattery

“The injustice of it, I couldn’t believe it” Former Team GB rower @oonagh_cousins talking about the #MECFS “scandal” where patients were told they were deconditioned & needed Graded Exercise & CBT It is the “opposite of what they needed” & that legacy still runs “super deep”

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Adam Schiff
Adam Schiff@SenAdamSchiff·
The Office of Government Ethics has been operating without a permanent director for more than a year after Trump fired the previous head of the office — effectively kneecapping the agency. No wonder there's been an explosion of corruption within the administration.
Adam Schiff tweet media
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Tess Falor, Ph.D. | Renegade Research
Does anyone have an inverted pattern of stress in Garmin data? (Higher stress while sleeping and "rest" only while awake and sitting up.)
Tess Falor, Ph.D. | Renegade Research tweet media
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Brian Allen
Brian Allen@allenanalysis·
Trump is now reportedly responsible for roughly 27.7% of the entire U.S. national debt accumulated under all presidents combined. That is an astonishing figure historically. The national debt just crossed $39 trillion. President Trump has added roughly $12–13 trillion to the debt across his two terms in office. That’s approximately 30% of ALL U.S. national debt accumulated since 1789. In 2016, Trump said he would pay down the national debt “over a period of eight years.” Instead: - First term: +$7.8 trillion - Second term: roughly +$4–5 trillion already And yes, COVID affected first-term spending. It does not explain adding another trillion dollars every five months without a pandemic. A political movement built on: “fiscal conservatism” “small government” “balanced budgets” has now overseen the largest debt expansion tied to any single presidency in American history.
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Gabrielle Giffords
Gabrielle Giffords@GabbyGiffords·
Four years ago today, 19 fourth-graders and two teachers went to school and never came home. They were shot and killed at Robb Elementary School in Uvalde, Texas. I’ll never forget the heartbreak of that day, and how Texans turned their pain into action. Their courage inspires me in this fight each and every day.
Gabrielle Giffords tweet media
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scary lawyerguy
scary lawyerguy@scarylawyerguy·
Bill Clinton has a random run-in with Loretta Lynch at an airport in 2016 - MASSIVE, WEEKS LONG SCANDAL JD Vance attends a private dinner with Chief Justice Roberts while the Court considers multiple Trump Admin lawsuits - "social call" ... "friendly pop-by"
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Rep. Mike Levin
Rep. Mike Levin@RepMikeLevin·
The Administration telling you it’s making America healthy again just made your drinking water less safe. Trump’s EPA rolled back the first-ever federal limits on forever chemicals, stripping protections for four substances linked to kidney cancer and developmental delays in children. There was no new science to justify this decision. Just a White House that looked at decades of research linking these chemicals to cancer and decided that protecting polluters mattered more than protecting your family’s drinking water. nytimes.com/2026/05/18/cli…
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Jackie Singh
Jackie Singh@HackingButLegal·
This new North Carolina House bill would jail or authorize the murder of women due to their personal use of birth control, such as an IUD, or for having or attempting to have an abortion. Call your legislators. #NCpol HB1232 ncleg.gov/BillLookUp/202…
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Ruth Ben-Ghiat
Ruth Ben-Ghiat@ruthbenghiat·
This is not politics as usual. We’ve never had an openly authoritarian leader in office. Nor have we had a party totally subservient to their leader. We must resist as such during these not normal times.
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Todd Davenport
Todd Davenport@sunsopeningband·
@AndrewG76201347 Gotta have both. Right now, the balance is with the bandaids. My point is somebody’s got to be figuring out the next tree to bark up.
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Bull Theory
Bull Theory@BullTheoryio·
🚨 THE ENTIRE AI BOOM MIGHT BE BUILT ON FAKE REVENUE. Latest corporate filings show that OpenAI and Anthropic alone make up over half of the entire $2 trillion future cloud backlog held by Microsoft, Oracle, Google, and Amazon. This massive pipeline is actually being created through a circular accounting trick called a round trip revenue loop. But how it works ? A tech giant gives billions of dollars to an AI startup as an "investment". But hidden in the contract is a strict rule forcing the startup to hand that exact same money straight back to the tech giant to rent their computer servers. Look at the documented case of Microsoft and OpenAI. When Microsoft invested $13 billion into OpenAI, it didn't just give them cash; it gave them "cloud credits" to use Microsoft servers. OpenAI used those exact credits to train its AI models, and Microsoft then turned around and recorded that server usage as brand new "cloud revenue" from a customer. The tech giant is literally paying itself with its own money and calling it a sale. This is why OpenAI’s annual cloud bill has ballooned to over $60 billion, double its actual revenue of $25 billion, kept alive solely by this recycled funding loop. Anthropic runs the exact same play, spending $2.66 billion on Amazon Web Services in just nine months, which was basically 100% of all the money it earned at the time. This manufactured demand triggers a second accounting trick where tech giants book massive paper profits. Every time a startup gets a higher value from a new funding round, the tech giant updates the value of its investment on its books and counts that unearned paper gain as direct profit. In Q1 2026, Alphabet reported a record $62.6 billion profit, but $28.7 billion nearly half, was just a paper markup on its Anthropic investment. In the same quarter, Amazon reported $30.3 billion in profit, but $16.8 billion of it was just an Anthropic paper gain. While Amazon reported record profits, its actual free cash flow collapsed 95% to just $1.2 billion because it had to spend $44.2 billion in real cash to build physical data centers. This has created a massive danger where these giant companies rely heavily on just one or two unstable startups. Microsoft has 49% of its $627 billion future backlog tied to OpenAI, while Oracle has an incredible 54% of its entire $553 billion pipeline relying on OpenAI alone. This perfectly mirrors the 2001 dot-com crash when Global Crossing and Qwest Communications swapped identical fiber-optic network capacity with each other just to book fake sales. Qwest had to erase $1.4 billion in fake income, and Global Crossing went completely bankrupt. The only difference is that the dot-com swaps were illegal, but today's AI loop is fully legal under current accounting rules. This legal loop inflates tech company stock prices, forcing automatic retirement accounts and index funds to buy even more of these tech stocks. It is a self feeding loop where investments, sales, and stock prices all go up on paper without the AI technology ever making real cash profits.
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Todd Davenport
Todd Davenport@sunsopeningband·
This tweet could apply to a lot of things. One of those things is research into ME/CFS, Long COVID, et al. research.
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