Lupus Association

#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR25. Kudos to all of you for collaborating to improve lives!

🦋 @michaelb4jordan is a winner and champion who took his mother, a #LupusWarrior to the #Oscars I believe that #LupusAwareness is fun, but living with #Lupus is no joke. Advocating for and supporting the work of @ACRheum and @LADAOrg matters!

Great job Trisha! #PatientVoice

The fight against copay accumulator policies isn't over. The 2026 copay accumulator report breaks down how CAAPs work and grades every state based on how many marketplace plans use them. See where your state stands: bit.ly/4uhOQJx #AllCopaysCount

#Antiphospholipid antibodies and #cardiovascular #thrombosis, now in @NatRevCardiol 👇: dlvr.it/TRQCr6 Systematic summary across various conditions. In some cases, we challenge the old conventional thinking... Truly multidisciplinary, led by our 🌟fellow @SinaRsh

The 340B program needs significant reform. We are calling on @GovKathyHochul @AndreaSCousins @NYSA_Majority to track where savings are going and prioritize transparency and patient benefit requirements! @patientaccess @IAFaccess @aimedalliance @GHLForg

Did you know 20+ states have passed biomarker testing coverage laws? These laws protect patients—but many insurers still aren’t complying. We’re pushing for accountability so the law works in real life. #BiomarkerAccess

✅ Look at what I was presented with during the opening ceremony of #ELM2026 😀 Being the President of European #Lupus Society @SLEuroSociety has been an incredible adventure, in particular with the white book, and the advanced #SLE Workshops. This is dedicated to #PATIENTS 🏆

NEW @AIDSadvocacy report finds nearly 40% of marketplace plans use copay accumulator policies that hurt patients with chronic illnesses. 31 states have plans with CAAPs despite federal court ruling. Download state-by-state data: bit.ly/4uhOQJx #AllCopaysCount

Hoy es día Mundial 🌏 de Enfermedades Raras! Hay más de 6⃣0⃣0⃣0⃣ enfermedades raras 🌏 300 millones de personas viven con una enfermedad rara en todo el mundo Las enfermedades raras afectan actualmente del 3,5% al ​​5,9% de la 🌎 población👨‍👩‍👧‍👦 mundial #Lupus #LupusChat

✅ Check the complex relationships between #cognitive symptoms such as #brainfog, objective #cognition dysfunction and MANY perturbators commonly identified in systemic #Lupus ⬇️

Paper reviewing the current and future direction of the treatment of #lupus nephritis #SLE #MedTwitter reference👇

ATAP has submitted formal comments urging CMS to reconsider its proposed GLOBE and GUARD drug pricing models. We explain why true reform must address rebate incentives, formulary manipulation, and opaque pricing structures that raise costs for patients. atapadvocates.com/atap-news/2026…

ASBM commends @SenatorBanks for introducing the SAFE Drugs Act — vital legislation to strengthen oversight of large-scale drug #compounding and protect patients from unsafe copycat medicines. Read our full statement: safebiologics.org/asbm-statement… @LADAOrg @GlobalCRC @WarOnCancer

✅ Very happy to report that @ern_reconnet @SLICC and @SLEuroSociety have finalized the second part of the recommendations for the treatment of RARE #LUPUS MANIFESTATIONS, adding 24 NEW manifestations to the previous list. May this help improve #SLE care where needed 🙏

Some Ohio public universities using discriminatory copay financial diversion programs against their employees, and who will not participate in the public debate process, are working behind the scenes to stop #OhioSB207. Call your State Senatortoday and ask for their support!

✅ After ~200h of work, how far have I been able to take #COGNILUP? ➡️ Online platform to assess #cognition in systemic #Lupus ➡️ 12 different #neuropsychological tests with gaming ➡️ Assessment of stress, depression, anxiety, pain, fatigue sleep issues ➡️ Patient & doctor modes

ASBM welcomes @DrMakaryFDA's reminder that FDA cannot verify the safety or quality of compounded drugs. We urge @US_FDA to back these words with strong enforcement so large-scale compounders can’t evade oversight or put patients at risk. Read our statement here: tinyurl.com/saferxcomp @GlobalCRC @LADAOrg @WarOnCancer @maxonwifi

ATAP applauds Congress and the Administration for advancing meaningful PBM reforms — historic, overdue, and good for patients nationwide. Let’s keep the momentum going to make meds affordable for all. atapadvocates.com/atap-news/2026…

The #MCEDAct has officially passed. This is a landmark victory for patients and families and a major breakthrough for early cancer detection. Thank you @preventcancer for your leadership!

We are proud to stand with 550+ advocacy organizations across the country in rooting for the #MCEDAct. Thank you @MikeCrapo @SenatorBennet @SenatorTimScott @RonWyden @RepArrington @RepTerriSewell @RepHudsonNC @RepRaulRuizMD for your leadership let’s get it across the finish line!