Stephanie Chuang

5 years of being cancer-free, I decided to share what I learned from diagnosis on (the ups & downs)♥️. It's the most personal video I've done for @Patient_Story. I hope it helps someone out there. youtu.be/DmIsism9oHk #BloodCancerAwarenessMonth #lymsm #PatientExperience

@DrewMoghanaki @Latinamd @anguspratt @LungCancer_Can Please let me know if you plan something like this. Would love to create a story about how patients and physicians build such an incredible bond through advocacy. And I’d love to honor Angus, whom I never met but shared messages in advocacy. 💔

Noooooo!! This is so painful to wake up to. 😞 My initial thought is how amazing it would be for us all to simultaneously wear a red hat at the next meeting to celebrate him, and asking myself why we didn’t think about doing that for him when he was still with us. It would have had 20X the impact of a standing ovation for this hero who will not be forgotten.

Mourning the loss of @anguspratt, a lung cancer 🫁 patient advocate from @LungCancer_Can, whose work continues to inspire us to aim higher and fight for better services and treatments for people with #lungcancer worldwide. Your light — and your red-beanie spirit — lives on. 🙏 #lcsm

Part of what makes ASH so great is getting to meet some of the incredible people doing tireless work for cancer patients. I was lucky to catch a few in Orlando this time ❤️. #ASH25 #MedTwitter #patient #care

A woman dies every two hours of cervical cancer in the US -- tragically and unnecessarily. With HPV vaccines and screenings, cervical cancer deaths are unnecessary, as Australia shows.

Shoutout to @mpdrc for his incredible focus on patients. Direct quote from one of his pts: "From hands on experience there is no better doctor in the history of the world than Doctor Ruben Mesa. I had emergency surgery, and they wouldn't operate on me because first of all, you go in and you see a bunch of emergency room doctors and they don't believe the patient. I said, 'Look, I understand this. My blood counts are going to be scary. You guys, I get it.' They said, 'No, we're not going to operate on you until we talk to somebody.' Doctor Mesa was the only one who returned the call, right away returned the call, and none of the other doctors did." 👏 Dr. Mesa shows the way it should be. #patientcare @advocatehealth @AtriumHealth

Unacceptable. @AnthemBCBS

If anyone knows @DRCamidge, they know how patient-focused he's been in his 20 years of leading lung cancer research. (And funny - just ask @JFreemanDaily 😉 .) But he hasn't been doctor only - he's been a stage 4 lung cancer patient, himself. Recently, he decided to open up about his experience after learning of his diagnosis 3 years ago. I had the privilege of hearing more about his experience firsthand and am grateful to him for continuing to help people, in spite of his incredibly busy schedule (BTW this was the 2nd time in 1 month he gave us @Patient_Story his time. The 1st was for our partnership with @ros1cancer on an educational series). Want inspiration on how to approach life? Take a look & listen 👇 thepatientstory.com/patient-storie… #lungcancer #cancerawareness #stage4 #patientcare

Top 10 healthcare problems I hear from patients: -High cost of insurance premiums -High out of pocket costs even if you have insurance -Not sure whether insurance will cover or not -Delays and denials in care due to prior auth -Can’t reach the doctor easily -Can’t get appointments and tests done in time -Hospitals in small towns closing down (longer distances for care) -Doctors overworked and not able to spend time -Paperwork before, during, and after care -No peace of mind due to the above All of these are getting worse. Few of these issues can be solved by AI and stuff. What we need is real leadership and reform on the major issues: coverage, affordability, access, which if done right should not cost more than we already spend. There are many competing interests. Physicians have very little say in it. We spend so much and yet things are not ideal for our citizens which makes me sad.

This was a tough one. 💔 Mia Hamant - 21 years old, star soccer goalie for @UW @UW_WSoccer - just passed away. Here is her story - in her own words. 👇 We were just getting ready to publish her story when we learned the sad news. She had been in treatment for a rare kidney cancer. I hope this story, which she wanted to share to help others out there, honors her memory. youtu.be/8VrH6gjyiCE?si… #patient #stories #inmemoriam @Patient_Story

It’s here!!! Mia the Marvelous Lab Explorer is now available for pre-order 🥳🥳🥳 This story celebrates ALL in the house of medicine but with a special shoutout to the behind-the-scenes heroes: the pathologists and medical laboratory professionals whose discoveries change lives every day. When Leo falls ill and the doctors need answers, Mia and her trusty microscope Micah step in to uncover the mystery. Together they show that heroes don’t always wear capes - sometimes they wear lab coats! @themuldermethod and I wrote this book to spark curiosity, inspire future scientists, and shine a light on the people whose work often goes unseen. It also provides insight into #leukemia and while it is not medical advice we hope it can be resource for patients, families and their loved ones a.co/d/iiIs46w #MiaTheMarvelous #ScienceForKids #PathologyForKids #STEMEducation #BehindTheScenesOfMedicine #StorytellingInScience #PathologyEducation @acweyand @FutureDocs @ShikhaJainMD @umichmedicine @UMichMedSchool @Oprah @StJude @MottChildren @UMichPath @Sara_Jiang @JMGardnerMD @cullen_lilley @AadilAhmedMD @CEKanakisMD @sanamloghavi @HemeReports @BloodCancerUtd @MArnold_PedPath @ALBoothMD @smlungpathguy @sarahanifmirza

My heart is racing and it's only Game 2. What an amazing finish😆 #DubNation

⭐ Here's a terrific project that's giving the partners of colorectal patients a chance to have their voices heard on the subject of intimacy. ⭐ Hopefully you can read the graphic. If not, please DM me and I'll email it to you.

@anguspratt Though we’ve never met, I’ve admired your advocacy and work. If you have any message you want to get out there, we are happy to amplify it. Sending you big hugs.

There comes a time to say Farewell. Winding Up or Winding Down journey.anguspratt.ca/winding-or-win…

I hear about this. This is not uncommon and it bothers me: Patient has cancer which is getting worse and causing pain Waits days for doctors appointment See the doctor. Scans ordered. But now waits days for an appointment slot to get the scans Scan is done and shows the cancer has worsened. Doctor prescribes new treatment Waits for days as insurance denies new treatment. Peer to peer call needed. Finally, treatment is approved. Waits for days again because chemotherapy appointments are backed up. Finally, the patient receives the treatment. But a month has passed. The cancer has progressed more. All of this with good private insurance. Imagine without. Oncology has advanced rapidly. Our medicines are very specialized. They require a lot of time, expertise, resources. Oncologists are stretched thin. It’s not the type of work that you can easily fill without compromising care. Many patients receive complex chemo and when there is a complication they end up without access to specialized care. We need to expand the oncology work force and limit the burnout that is causing good oncologists to leave patient care for other jobs or retire. There is no question we have made remarkable progress against cancer. And several promising new treatments are on the horizon. Will we have the resources to administer them safely and to all those who need it?

The simple truth is we’ve got a problem in this country. One where we’ve created us vs them, the other side is evil. Stoke outrage to capture folks into ideologies. I don’t know how we get there but we need our shared humanity more than ever. We’re so lost.

For years, I was told my family history of #lungcancer was “just a coincidence.” That multiple diagnoses on both sides of my family were only because they had a history of smoking, and that my own diagnosis at 39 - A 3rd generation on both sides of my family - was random. Research like this finally validates what patients like me have always known: family history matters. Screening guidelines need to reflect this reality - too many at risk people are being dismissed and missed. #WCLC25 #FamilyHistoryMatters #LCSM @IASLC

@majorajay @ASH_hematology @DrSusieC2 That's high praise ;) congrats!

Is this my brand now, @ASH_hematology?! 😂🤣 Very honored to receive this award! #ASHCRTI

@artdmetz ❤️🙏

@StephChuang It’s sadly the trend now and comes down to economics. Also an increase in video appointments which can be either convenient ir frustrating. Thank you for all the amazing work you do with the videos and information! So helpful!!!

Me: Hi, I need to make an appointment with (Specialty) - just got the referral through from my doctor. Them: Okay great! Let's check the calendar..(10 seconds) Oh looks like they are all booked out for the REST OF THE YEAR. ...it's Early August, folks. Serious question: Has this ALWAYS been the case? I keep hearing (anecdotally) how hard it is to get an appointment, whether it's with PCP/internal medicine or a specialist. Just not clear if this was always the case and I didn't know because I didn't require such a long bench of healthcare providers till now 😞. #patientcare #patientcenteredcare #MedTwitter @Patient_Story

Was heading into an(other) appointment today when I saw an elderly woman lying on her back, she had clearly fallen and was in pain. A man was with her trying to get an ambulance. I went inside to see if I could get assistance for her (wheelchair? HCP?). When I went back out, I learned her name, Norma, and that she was taking an Uber to an appointment.. at 95 years old. I know there may be a million reasons why she had to get rideshare to her appointment. She may prefer it this way. I was equal parts admiring her independence and also feeling sad as a kneejerk reaction. Culturally, that would just be out of the question in other countries.

@artdmetz Same! I got an appointment with a PA first, then was able to get seen with a PCP. Otherwise I would have had to wait 6-8 months for a first appointment 🫠

@StephChuang The other trend I see happening too is you get an appt and it’s not a doctor but the PA.

@jeff_sharman This is terrible. I know - just one of many issues to tackle when it comes to healthcare. We need to get more help/support for HCPs and cut burnout. Thanks for sharing.

@StephChuang This is a tragically extremely common and a consequence of misguided health care policy. Too many to list in a short tweet. Common for new M.D.s to graduate 300-400K in debt and primary care cannot generate enough income to pay that back and buy a house / start a family.