Daniela Sosa-Sarkar
98 posts

Daniela Sosa-Sarkar retweetledi

OUR #PANS #PANDAS BILL IS LAW! No longer can insurers in VA deny coverage for young people suffering from these devastating neuroimmune disorders! Huge shoutout to the world's best patron Del Patrick Hope @HopeforVirginia & our amazing sponsors in the VA General Assembly! 💚

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Daniela Sosa-Sarkar retweetledi

🔥HB1641, calling for Medicaid & private insurance coverage for #PANS #PANDAS treatment, was just introduced in the VA legislative session by our patron Del Patrick Hope @HopeforVirginia.🙏 HUGE thanks to @RipSullivan6 & HIRC for fast-tracking the review. LET'S PASS HB1641 NOW!🔥

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Daniela Sosa-Sarkar retweetledi

Virginia Advocacy Group @VAAlliance4PA Shines Light on Life-Altering Disease Striking Young People. Join us in raising awareness about #PANS #PANDAS on Oct 9, World PANS/PANDAS Awareness Day #LightUp4PANS @inflamedbrain_ @HopeforVirginia @SosaSarkar einpresswire.com/article/750321…
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Daniela Sosa-Sarkar retweetledi

More great news on #PANS #PANDAS #AwarenessDay. The Alex Manfull Fund announced a partnership with @GeorgetownUniversity on a groundbreaking PANDAS/PANS research and clinical learning effort. 🩺💻 💪einpresswire.com/article/750121… @ManfullPhD @SosaSarkar @AngelaMGentile
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Daniela Sosa-Sarkar retweetledi

The Alex Manfull Fund is holding its 3rd symposium on Nov 2, 2024, where experts discuss distinguishing PANDAS/PANS from psychiatric conditions and explore new research on genetics, the microbiome, and cytokines.
#PANDAS #PANS #MedicalSymposium #AlexManfullFund

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Daniela Sosa-Sarkar retweetledi

Thank you @GlennYoungkin @VA_SHHR @HopeforVirginia @BarbaraFavola @RipSullivan6 and all our supporters for making this critically important recognition possible. 🙏 Next up: insurance coverage for the diagnosis and treatment of doctor-prescribed #PANS #PANDAS for all Virginians!
Secretary Janet Kelly@VA_SHHR
Today is #PANDASAwarenessDay. PANS/PANDAS is a condition that causes sudden onset of OCD and anxiety in children, often following an infection. Early recognition is key to effective treatment. 🧠💙 #MentalHealthMatters #RightHelpRightNow @VAAlliance4PA
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Daniela Sosa-Sarkar retweetledi
Daniela Sosa-Sarkar retweetledi

Bartonella is a beast…and mental health professionals need to learn more about this pathogen.
LymeDisease.org@Lymenews
Patients diagnosed with schizophrenia or another psychotic disorder are three times more likely to have Bartonella DNA in their blood than adults without these disorders. lymedisease.org/bartonella-psy…
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Daniela Sosa-Sarkar retweetledi

My 9 yo Son was “mentally ill” until an underlying physical source of inflammation was considered. Given this could be a simpler solution to the impossible CAMHS route, does this not deserve a mention @thetimes @DrElaineLockha1 ? #pans #pandas

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Daniela Sosa-Sarkar retweetledi

ECLIPSE, The Alex Manfull Fund Silent Auction, is NOW live! Bid now through April 14 @ 9 pm. Check out the amazing items being auctioned. Funds raised will support education and research on neuroimmune disorders. Bid wildly to help #Eclipse #PANDAS #PANS! bit.ly/TAMF-Eclipse

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Daniela Sosa-Sarkar retweetledi

We did it! Our bill to re-establish the Governor’s Council on PANS/PANDAS in Virginia just became law! 🎊🥳🎉 You spoke & your voices were heard. 🙌🏽 Next: HB513. Huge thanks to everyone at #VA4PA & especially our patron @HopeforVirginia & @SenatorHashmi @RipSullivan6 @AdeleMcClure_ 💚

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@VAAlliance4PA @HopeforVirginia @SenatorHashmi @RipSullivan6 @AngelaMGentile @reneemg @KimDrewWright @ChampionTeresa Thank you to our advocates, Delegate Hope and the Virginia General Assembly for unanimously supporting the need to increase awareness, education and research on PANS/PANDAS. Next is HB513 to assure insurance coverage!
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Daniela Sosa-Sarkar retweetledi

Get ready! ECLIPSE, The Alex Manfull Fund auction, will go live 4/8 @ noon & end 4/14 @ 9 pm. Visit alexmanfullfund.betterworld.org/auctions/going… to check out the amazing auction items. Funds raised will help increase awareness, education, and research on #PANDAS #PANS. Join us!!

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Daniela Sosa-Sarkar retweetledi

#WomensHistoryMonth Highlight: #LymeWarrior Michal Tal, Ph.D.
Dr. #MichalTal’s research w/the #TalResearchGroup at #MIT on Lyme’s immunological response has increased the understanding of this long haul disease. Read more here: buff.ly/3VlRdMn.
@ImmunoFever
@MIT
#Lyme

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Daniela Sosa-Sarkar retweetledi

[NEW RESEARCH] Infection with Bartonella Established in Immune-compromised Mice, but not Immune-competent
A few top researchers in the #tickborneinfection scientific community performed a study to establish a living organism model to study #Bartonella infection, treatments, and transmission dynamics in the future. Previous research on antibiotic susceptibility has been studied in vitro (outside living organisms).
When immune-competent mice were injected with Bartonella, the infection was acute and resolved. When Bartonella was injected in immune-compromised mice, the infection persisted, which helped identify a living organism model where Bartonella persists.
Could these findings be extrapolated to human infection with Bartonella? If so, this suggests immune suppression is a pivotal variable in determining if an infection becomes chronic. It could explain why some people exposed to a tickborne pathogen do not develop #chronicillness while others do. What suppresses the immune system? The most significant I see in my practice are environmental toxins such as mold toxins and heavy metals, and other infections.
Source: ncbi.nlm.nih.gov/pmc/articles/P…

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