Ted Monroe

'...it’s like waking up in a suit of medieval armour after a night on the mead'. I wrote an article on #LongCovid for @The_Fence_Mag the-fence.com/a-failure-to-c… @gezmedinger @long_covid @LongCovidSOS @longcovidlabs @DarrenBar88 @PutrinoLab @DrJamesGill @BinitaKane @DrAsadKhan

“That is why Starmer attracts such visceral hostility. Not because he is secretly tyrannical or uniquely manipulative, but because he appears as the anthropomorphic embodiment of procedural Britain itself: the human face of the unread contract.”

@ABrokenBattery @CharlotteCGill @bhanlon15 Thanks, Adam!

@TedMonroe91 @CharlotteCGill @bhanlon15 Well done, Ted! Have retweeted

My essay discusses the desperation of living with a severe form of Long Covid and ME that has rendered me bedbound. Might interest @CharlotteCGill @ABrokenBattery @bhanlon15

@CaroleBruce17 @KatyBruce108 Thanks, Carole! I hope you enjoy it!

@TedMonroe91 @KatyBruce108 Oh well done! I’m glad there’s going to be a new edition to join my old, well thumbed copy.

My essay on #LongCovid is included in a new edition of Virginia Woolf's 'On Being Ill' from The New Menard Press - alongside the works of 11 other contemporary writers. Book out on June 2nd. Pre-order here: waterstones.com/book/on-being-…

@KatyBruce108 Thanks, Katy!

@TedMonroe91 So great to see that you're included in this Ted.

I’m so glad this is finally being covered seriously 🙏

1 in 200 humans on earth are missing from their own lives due to ME. ME is a devastating physical illness that makes rubble of the lives of patients and families. Clinically, we’ve known it’s real for decades. Biologically, we had proof by the 1990s. But society still acts like it’s not real. This is a historic injustice. #MEAwarenessDay

"One of the greatest medical scandals" and it's still ongoing #MEAwarenessDay

@GretelleMaitre @TheRSC It's tempting to see it as Shakespeare's farewell to the stage. Modern scholars love to debunk this, but look out for the explicit link between magic and art whatever you decide!

I’m off to see The Tempest at @TheRSC on Thursday. It is the lone Shakespear play I’ve not seen or read. Do I remain ignorant and watch with virgin eyes, or do I read between now and then so as to enjoy all the more? It’ll be the fifth time I’ve seen K Branagh on stage. Blissful apprehension…

This is like watching a painful and inevitable England batting collapse.

NIH and UCSF researchers argue Long COVID trials should begin now. They call for disease modifying trials of immunomodulators, antivirals, neurological drugs, GLP-1 drugs, monoclonal antibodies and devices. thelancet.com/journals/eclin…

It’s Millions Missing, ME Action’s day of ME/CFS advocacy, and fittingly, I’ve been too sick and tired to write about it until now. Life with ME/CFS is a life of limits. Millions Missing 2026: Frail and frustrated open.substack.com/pub/mollyfree/… #millionsmissing @MEActNet

Today is ME/CFS Awareness Day. I am a very severe ME/CFS patient. I have not left my mattress in around 9 years, and I have been sick much longer. I cannot have visitors. I cannot watch TV. I can speak only very little with my caregivers. I can only read a few pages per day, sometimes less. I live mostly in darkness, in constant pain and physical discomfort. There has not been a single day in the last 10 years that was not “ME/CFS Awareness Day” for me. For millions of patients, this disease is not a campaign, a hashtag, or a yearly reminder. It is total life destruction, every single day. What we need is not symbolic awareness alone. We need serious research, clinical infrastructure, political recognition, urgency, and your help.

"Nothing can inspire sympathy for Roald Dahl’s indomitable child-hater, Miss Trunchbull, like teaching in a school." open.substack.com/pub/tedmonroe9… #LongCovid #ME

🩵On #MEAwarenessDay we are sending an open letter to @rcpsych calling for alignment with current evidence. Supported by 20 organisations. +35 advocates, clinicians & academics! In democratic spirit we are offering a public sign-on opportunity 🔗👇️ #RCPsychIC #Garner

I am 45 today. I’ve had ME for 23 years and Long Covid for 1.5 years. I planned to spend some time in the wheelchair today, but it turned out to be one of the worst days in months. Party party. So I want to say something general that applies to millions of people across the world: acute chronic illness - like ME or Long Covid - generates uncertainty. How long will this episode last? Will I permanently get worse? Is this something new? What does this mean for my life expectancy? How can I suffer this much and not be dying?

Long Covid has millions of disabled people, no approved treatments, and shrinking research budgets. Patients are writing polite emails to agencies that aren’t reading them. The lesson of the AIDS movement is that nothing changed until grief became visible. We should be studying that history right now.