ValproateSurvivors 🤰 #Valproate caremongerer

Sadly @RCSnews the NHS is not transparent - both NHS and Private hide or alter notes, do not present audits of harm, falsify %’s and in my recent experience neither NHS nor Private are mandated to recall patients where harm is proved under the #NPRF National Patient Recall Framework whiz was set up after the Ian Paterson inquiry identified “wilful blindness” - recalls and inquiries should be robust and no one should be able to dodge this by using false narrative and self investigation!

@Jeremy_Hunt Does the submission include medicines in pregnancy?

Constructive APPG on Patient Safety evidence session today with Baroness Amos on the National Maternity and Neonatal Investigation. Good discussion with MPs, charities and Royal College colleagues as we shared the APPG’s submission. The next step must be structural reform that delivers real change in maternity safety.

bmj.com/content/387/bm… 🚨This doctor lied to protect the implanting surgeons and herself - With deliberate Concealement and dishonesty many of us were timed out of our claims due to lack of medical evidence 🚨Deliberate Concealment: Under Section 32(1)(b) of the Limitation Act 1980, if a defendant deliberately conceals a fact relevant to the claimant's cause of action, the limitation period is postponed. 🚨How can the Rule of Law exist if a surgeon is permitted to ‘lie their way out of a claim’. 👉The Limitation Act should not protect the dishonest doctor over the injured patient.  @bmj_latest @wesstreeting @PSCommissioner @MoJGovUK #women #mesh #redress

Where are Audits, of the Mesh Implanting & Removing Centres, requested by the First Do No Harm Inquiry & Redress for harms? @APPGFDNH The Patient Safety Commissioner Role was implemented for this Have women been abandoned on indefinite waiting lists? Are there skilled surgeons?

@Malriel @TazHussain007 @sharrond62 @SusanMorgan19 Shocking what's happened to you all. It makes no sense.

@sharrond62 @SusanMorgan19 Not only abandoned First Do No Harm but ghosted the Mothers whose babies were subjected to huge doses of the the abortion pill in the Womb. The IMMDS Review was set up for Primodos families but we are now removed from all subsequent Reports. Primodos.org @malriel

Wes Streeting has abandoned the ‘do no harm’ principle. Shame on him telegraph.co.uk/news/2026/02/2…

@emilyltownsend @PSCommissioner Thanks for the support it's been far too long now. Overwhelming support for an interim payment from MPs at the recent debate - completely ignored!

Pelvic mesh and sodium valproate - after govt failed to give timeline for compensation last wk, @PSCommissioner says she will be approaching No 10 directly, requesting info under Medicines and Medical Devices Act if required. She said: "This is very much unfinished business."

My colleague and I wrote copious well studied documents for the government from 2012…. In 2018 we wrote to Baroness Cumberlege raising valid points after our meeting with her in December 2018 - but we were never invited to speak at the oral testimonies!!! Many valid points we raised were not adequately responded to …. “ I do hope for positive outcomes for the TVT/Pelvic mesh injured in the New Year who are in need of full apology and compensation for the unconsented and experimental use of a device meant to enhance health, but for it caused utter devastation. Kind regards and Happy New Year.  Susan Morgan and Vasanta Suddock (RGN, BSc Hons, BA Dip) 31st December 2018”

@myfight2beheard @ShaunLintern @PSCommissioner PSC is now part of MHRA. But it might just be an Elon thing that the accounts monitored

@ShaunLintern @PSCommissioner @PSCommissioner no longer monitors her X account.

🚨 For the first time the government has said financial compensation for sodium valproate victims is being considered but there is still no timetable - now @PSCommissioner says she will target No.10 for answers: thetimes.com/article/69c4d7…

@myfight2beheard @ShaunLintern @PSCommissioner Agreed. It's about doctors providing the right information. But while the powers that be argue about whose fault it is, we all need compensation for our families so that we can move forward and get some kind if respite.

@ShaunLintern @PSCommissioner Every patient that was denied informed consent, denied details of a serious KNOWN risk before a non-urgent surgery/procedure/ medication and needlessly harmed, life permanently altered, should recieve compensation. Every single one.

@Jeremy_Hunt Because they have better employment protection and social welfare - resilience in the system and the population overall. Less need to cover backs and tracks. And probably fewer conflicting medical organisations.

Today my charity Patient Safety Watch and Imperial publish our biannual ranking of patient safety globally: the UK is a disappointing 21st out of 38 OECD countries. Why does Norway come top despite spending a lower proprotion of GDP? hsj.co.uk/patient-safety…

@SusanMorgan19 The Review was good but crucial details weren't available or were redacted. It picked up the common threads on informed consent to treatment but not the specific flaws that caused these specific failures. A PI would help.

As a mesh-injured patient for 16 years, I've met Baroness Cumberlege & contributed to her vital review. It's an excellent foundation, but lacks the #legal powers for full accountability on complications, attitudes, & regulatory failures. We need a statutory public inquiry like the Infected Blood one to uncover the truth and full extent of mesh harm and it’s being launched without knowing long term effects & protect women We need justice #meshinjuries #MeshScandal #PublicInquiry #PatientSafety #infectedblood #contaminatedblood @APPGFDNH @wesstreeting @StuartAndrew @PSCommissioner @MHRAgovuk @NICEComms @DHSCgovuk @RupertLowe10

Labour calls for public inquiry into vaginal mesh implants independent.co.uk/news/uk/politi….

A familiar excuse. There is always space in the room, it doesn't take rocket science to include patient representatives on a rolling basis or online remotely. This attitude only results in conflict. hsj.co.uk/quality-and-pe…

USA doctors are calling for a PPP. UK campaigners achieved this in 2018 (after 3 years work with MHRA) psychiatrist.com/jcp/beyond-box…

Slow reductions in use- all good. But why is the duty of safe prescribing being extended to pharmacists? Are neurologists unsure of how to do their job? More buck passing and muddy waters. @ShaunLintern @JasonFarrellSky @bbchealth pharmaceutical-journal.com/article/news/v…

Similar with Valproate but we had PILs, but information not passed on in a way we can understand using the scaremongering argument - despite alternative treatments available.

I'm becoming more aware of how pharma harm campaigners seem to be fighting for the wrong side without realising it. Lobbyists and gov put fwd the campaigners that are the path of least resistance. @BBCSouthNews @itvmeridian @ShaunLintern

Spina bifida risk in 1974 was around 5 in ten thousand which is 0.05%. Exposure to Valproate creates a 1% risk of SB, which is twenty times 0.05. Here's the 1974 Patient Information Leaflet. No woman would take that risk knowingly. @ShaunLintern @AndyBurnhamGM @PSCommissioner

@CimVda @BarackObama Violence against women is restricting their access to information with which to make crucial decisions around pregnancy. And accusing those affected as being anti autism is not helpful.

We have people in power making broad claims around certain drugs and autism that have been continuously disproven. The degree to which those comments can undermine public health, do harm to women who are pregnant, create anxiety for parents who do have children who are autistic – is violence against the truth.