Christina D@Christina4HD
There will come a day when history looks back on Huntington’s disease and asks who stood beside this community when hope was on the line.
The Huntington’s disease community will remember.
We remember the people who walked beside us.
The ones who rode bicycles across America for HD research.
The advocates who ran marathons.
The families who wrote books and shared painful stories so the world would finally see this disease.
The doctors, researchers, caregivers, and scientists who dedicated their lives to helping families they may never even meet.
Every year at our annual convention and symposium, we celebrate those people. The ones who chose courage, compassion, and humanity over indifference.
We remember the advocates, researchers, and families who refused to give up when progress felt impossible.
And history will also remember the voices that publicly dismissed the first gene therapy to show real promise for Huntington’s disease before its story was fully written.
Unless someone knows with absolute certainty that this science could not save lives, caution should be exercised when speaking publicly about hope that families have waited generations to see.
Words matter.
Patients hear them.
Families carry them.
Spend time with this community.
Meet the presymptomatic.
Meet the symptomatic.
Meet the children at risk.
Meet the families who have buried loved ones to this disease.
You may leave with a very different perspective.
When this moment is remembered, let it be said you stood with patients and families fighting for hope.
#HuntingtonsDisease
