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Cure MND
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Cure MND
@CureMND
Six people a day die with Motor Neurone Disease (#MND) / UK. @MHRAgovuk & @NICEcomms should conduct an Accelerated Review for existing treatments.
Oxford เข้าร่วม Kasım 2019
2.6K กำลังติดตาม1.1K ผู้ติดตาม
Cure MND รีทวีตแล้ว

JustGiving.com/Matt-jones88
Can you all please read this story, share and donate, thank you.
@mndassoc @MNDManchester @mndeducation @JustGiving @mndresearch @MNDPatients @MNDA_WestYorks @mndcampaigns @ALSMNDAlliance @mndVIPteam @MNDScotland @CureMND @mndaeastsurrey
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Cure MND รีทวีตแล้ว

Remembering my friend Elsie today.
Elsie died while fighting so hard for a chance to access #Nurown to see if she would also respond. The broken system failed her despite a 100% fatal #ALS diagnosis. They left her to die.
#BloodOnYourHands #PeterMarks @FDACBER @DrWoodcockFDA
elsie johnson@elsiejo22955940
pALS on NUROWN-WHEELCHAIR TO STANDING pALS DENIED ACCESS TO NUROWN-STANDING TO WHEELCHAIR SAME WINDOW OF TIME
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Cure MND รีทวีตแล้ว

It supports a rapidly growing expanded access program.
Its leaders are committed to URGENTLY finding treatments & cures. ALL DONATIONS go to research/treatments, NOT salaries.
PLEASE encourage fundraisers, friends & family to donate.🙏🙏 #HealeyHope
giving.massgeneral.org/donate/healey-…
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Cure MND รีทวีตแล้ว

I still hear other orgs brought up. This can't be stressed enough!!!
The CLEAR LEADER for #ALS treatment access/research is the @MGHNeurology Healey Center.
NO OTHER ORG COMES CLOSE. Uniting behind them advances ALS at all trial sites across the country. #PlatformTrial
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Cure MND รีทวีตแล้ว

#GivingTuesday since it’s giving tuesday, if you could spare anything, during the current climate to help us raise funds to allow David to return to mexico for stem cell therapy 🤞🏼🙏🏼 #balmerbattlesmnd gofundme.com/f/bc469k-david… @CalvinHarris @LewisCapaldi @kevinbridges86
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Cure MND รีทวีตแล้ว

Approaching ✨50,000✨
If everyone who's signed our petition with @mndassoc and @MNDoddie5 got one other person to sign, we'd be a step closer to securing a vital debate in the UK Parliament. #United2EndMND
Let's make it happen! 👇
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Cure MND รีทวีตแล้ว

100,000 signatures 👏👊 Thank you to everyone who has signed our petition with @mndassoc and @MNDScotland - this means the petition will now be considered for a debate in parliament.
It's not too late to add your name, every signature is important: petition.parliament.uk/petitions/5645…

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Cure MND รีทวีตแล้ว

#Nurown Lucha mundial contra la ELA - No podemos esperar @US_FDA @EMA_News - Sign the Petition! chng.it/VDbYxxS5 via @Change
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Bronstein, Gewirtz & Grossman, LLC Notifies Investors of Brainstorm Cell Therapeutics Inc. (BCLI) Investigation uk.finance.yahoo.com/news/bronstein… via @Yahoo
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@AlsChange @EuansCentre @UHSFT @MNDoddie5 @MNDScotland Thank you for your message. There are no changes to the investigational medicinal compounds being
tested in @mndsmart (trazodone & memantine). Best wishes.
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Cure MND รีทวีตแล้ว

@suvankarpal @EuansCentre @MeritCudkowicz
Dear Dr Pal
Thank you for the initiative.
Is the first drug indicated below Namenda / Namzaric (Memantine & Donepezil)?
What is the second drug on the platform trial?
The first drug is already used to improve the (1/3)
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Dear Clintons,
You know what's deplorable?
Being Impeached!!!
#BasketOfDeplorables
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Cure MND รีทวีตแล้ว
Cure MND รีทวีตแล้ว

Context! Let's make sure we listen to Medical Doctors @BrainstormCell @AlsOklahoma @alsassociation @ALSMNDAlliance @CureMND #als #endals @alstexas @ALSTDI @ALSA_EC @alssac @alssac @ALSA_RockyMtn @alsnewstoday @ALSANorthernOH @ALSAlabama @ALSAIOWA @ALSAMA @ALSAUNY @ALSA_Nevada
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Cure MND รีทวีตแล้ว

#newpetition petition.parliament.uk/petitions/5633… Have a look, sign, share and retweet please folks. @Rob7Burrow @siferry8 @aconnolly91 @siobhancon1 @MNDoddie5 @DoddieWeir5 @DarbyRimmerMND @CureMND @jucojames @MarcFairbairn90 @MartinJ_MND @balmerbattlesm1 @StephenMoran7
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Cure MND รีทวีตแล้ว

#alstreatmentsnow Light a candle for #ALS #MND, Amyotrophic Lateral Sclerosis, an agonizing and deadly disease. We need treatments now !!! #NUROWN #AMX0035 @US_FDA @EMA_News
Join this challenge and nominate other people @Emma_MacLennan @lynseymerritt @CureMND @emmccormick2005

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Cure MND รีทวีตแล้ว

Still wrapping my head around the fact that Kev Sinfield is a couple of quid away from raising £2.5 million for his friend @Rob7Burrow.
There are plenty of examples of poor leadership around but Kev is strong, loyal and selfless.
Once a captain, always a captain.
What a fella👏🏻

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