Sissel Sunde 🇳🇴

Fantastic to see Version 2.0 coming to fruition! Updated content, newer studies and more info on #longcovid, chronic #lyme, hypermobility, #mcas and vaccine injury. More content to come very soon: shorter form factsheets and more distilled summaries of the longer form content 🙏🏻

Just came across that on reddit. Cool graphic. sciencedirect.com/science/articl… #MECFS #pathophysiology #research

1/ Long COVID is one of the most complex post-infectious syndromes ever studied. A new review in Nature Communications Medicine attempts to unify the biology. Here’s what’s established, what’s emerging, and what’s still speculative. 🧵

NON-VIOLENT PROTEST DURING A CONFERENCE ON #LongCovid. We are people living with Long Covid and we are sick. We want real care, not cognitive behavioral therapy or meditation. We need medications for our lungs, hearts, stomachs, immune systems, brains damaged by #Covid.

@winslow_la @forskningno Gjerne også damen som stormer mot podiet, griper etter pasienten og roper "out" - mens hun fekter med armene?

@winslow_la @forskningno Kan dere undersøke hvem i MindBodyLab som skyver en pasient bort med makt, og skrive om det også - når dere først har fremstilt Silje Reme som et offer i denne saken? forskning.no/covid19-medisi…

La personne qui pousse une militante pacifiste en début de video est une dirigeante de "mindbodylab", du groupe de "Recherche scientifique sur l'interaction complexe entre le cerveau et le reste du corps". mindbodylab.no Le site est peu indicatif, mais l'un des projets

Chengdu University researchers found PEM may arise when exertion sparks a loop of poor mitochondrial energy, immune activation, and brain inflammation, turning mild effort into lasting fatigue and brain fog. frontiersin.org/journals/immun…

After a slight delay.. our new article: Current status and future perspectives on the mechanistic and pathophysiological understanding of long COVID Is here: nature.com/articles/s4385…

A song and film made by the father of very severe ME patient Jonas. Some nice visuals. An original take. Yet also really heartbreaking to see. It's a cry for help!!! Watch it. Share it! #pwme #myalgicE #millionsmissing youtu.be/ZzpaYMSyAeo?is…

@microbeminded2 Amazing! Congratulations! Happy to see you're working to "expand the LCCI model to chronic Lyme disease, ME/CFS, and related conditions" as well. 🙏

This is an incredible $10M donation to our PolyBio Long COVID Cure Initiative (LCCI) Program. Funds are from the Park-Pagliuca Fund: a philanthropic collaboration between the families of Todd Park & Steve Pagliuca, each of whom have family members impacted by Long COVID

@polybioRF @threadreaderapp Please unroll

14/ “The biology of Long COVID is measurable. The missing piece is the infrastructure to validate those signals and translate them into biomarkers, diagnostics, and treatments,”said Todd Park, co-founder of Devoted Health and Athenahealth. “LCCI is built to deliver exactly that.”

Breaking: Park-Pagliuca Fund Donates $10 Million to PolyBio Long COVID Cure Initiative PolyBio Research Foundation today announced a $10M donation to support the Long COVID Cure Initiative (LCCI), a program designed to deliver treatments to millions of Long COVID patients by translating key academic findings into real-world diagnostic tests, faster and more targeted clinical trials, and accessible, patient-ready therapies.  prnewswire.com/news-releases/…

A scientist with ME/CFS asked the question no one else did: what happens after exertion? Two‑day CPET turned throwaway data into a replicable body of objective evidence of post‑exertional malaise. My latest for Substack is why a patient made two-day CPET. Link in the replies.

The program for the International Long COVID & PAIS Conference 2026 is now online! islc-pais.org Many slots available for oral presentations Abstract deadline: 15 May 2026 A great way to present your (unpublished) work! Amsterdam | 26–29 Aug 2026 @ISLCPAIS #longcovid

Emma Shorter was told people who don’t recover from behavioral treatment for #MECFS have made the illness their personality. She was told not to meet other patients and to trust the therapist over her own body. She went from walking 4 mins a day to needing a wheelchair.

ICYMI: Watch our webinar with @C_Scheibenbogen on her Catalyst Award-winning study on #GLP1 drugs, #MECFS, and subtyping. youtu.be/v_c3wSmmJeA

The Wyller Continuum stiller ett spørsmål: "Holder rammeverket bak norsk ME-politikk siden 2006 — sustained arousal-teorien og den biopsykososiale tilnærmingen — stand mot forskningen, pasienterfaringen og rettspraksisen som er kommet til?" #p1" target="_blank" rel="nofollow noopener">the-wyller-continuum.vercel.app/#p1 #MECFS

Todd Davenport wrote an excellent explainer on Post Exertional Malaise in ME/CFS @sunsopeningband GPs and specialist clinicians need to catch up on the basic science and more recent research. There is no excuse. See it here: open.substack.com/pub/likeannope… My Instagram story: instagram.com/stories/humani…

Watch! Dr. Avik Roy & Dr. Gunnar Gottschalk of @RedefiningMECFS share how six years of work on the molecular mechanisms of #MECFS has led to one of the only ongoing clinical trials specifically designed around a defined biological target. youtu.be/OMmjcTKxivU #MEAwarenessHour