Jordann Coleman

277 posts

Jordann Coleman

@JColeman02

Working mom. Advocate for Newborn Screening and MSUD.

SF Bay Area Katılım Ağustos 2011

219 Takip Edilen68 Takipçiler

Jordann Coleman retweetledi

Patients & Providers for Medical Nutrition Equity@NutritionEquity·31 Oca

Thank you @RepMcGovern for advocating on the House floor today for the 2.7 million Americans with gastrointestinal or inherited metabolic disorders who rely on #medicalnutrition. It's #TimeforMNEA

Rep. Jim McGovern@RepMcGovern

I introduced the Medical Nutrition Equity Act with @RepRutherfordFL so families impacted by inherited metabolic diseases or gastrointestinal conditions can access the specialty food and formula they need to live their lives to the fullest. Congress should pass it NOW!

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Jordann Coleman retweetledi

Sarah Chamberlin@altChamberlin·17 Şub

Today marks the 1-year anniversary of the start of what's been called the #formulashortages but people in my rare-disease community know as the #formulacrisis: a way-too-long thread.

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Jordann Coleman retweetledi

Patients & Providers for Medical Nutrition Equity@NutritionEquity·13 Ara

TY to @joniernst and @SenBooker for your comments in support of the #MNEA S2013/HR378 in today's hearing on #foodasmedicine. Passing this legislation before year's end is imperitive to achieve equity for those who rely on #medicalnutrition. #MNEAFinishLine

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Jordann Coleman retweetledi

Patients & Providers for Medical Nutrition Equity@NutritionEquity·8 Eyl

The #formulashortage showed #medicalnutrition is necessary for thousands to survive & thrive. Our crisis of access won’t end when supply resumes. Save the date 9/28 for #WHConfHungerHealth & bring #MNEA S2013/HR3783 to the table. #MedicalNutritionEquityNow NutritionEquity.org

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Jordann Coleman retweetledi

Sarah Chamberlin@altChamberlin·4 Haz

Thank you @FrancesSSellers for continuing to shine a light on those in the #metabolic community who rely on medical nutrition for lifelong treatment of their disorders. The #formulashortage won’t end until we pass the #MedicalNutritionEquityAct. washingtonpost.com/health/2022/06…

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Jordann Coleman retweetledi

Patients & Providers for Medical Nutrition Equity@NutritionEquity·25 May

.@FrankPallone @CathyMcMorris TY for @EnergyCommerce hearing on formula shortage. Solving the formula shortage crisis requires addressing #SupplyAndACCESS. Pass the #MedicalNutritionEquityAct this year

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Jordann Coleman retweetledi

Patients & Providers for Medical Nutrition Equity@NutritionEquity·25 May

.@repdianadegette @repmgriffith TY for @EnergyCommerce hearing on formula shortage. Solving the formula shortage crisis requires addressing #SupplyAndACCESS. Pass the #MedicalNutritionEquityAct this year

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Jordann Coleman retweetledi

Patients & Providers for Medical Nutrition Equity@NutritionEquity·25 May

TY Sarah Chamberlin @howmuchphe for testifying on the importance and NECESSITY of specialty formulas used to treat certain inherited metabolic diseases & gastrointestinal conditions that prevent patients from digesting or metabolizing regular foods #SupplyAndACCESS #PassMNEAnow

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Jordann Coleman retweetledi

Patients & Providers for Medical Nutrition Equity@NutritionEquity·25 May

Thank you @repmarkpocan for announcing during the @AppropsDems hearing on #formulashortage that you will cosponsor #MedicalNutritionEquityAct! #SupplyAndACCESS

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Jordann Coleman retweetledi

Patients & Providers for Medical Nutrition Equity@NutritionEquity·25 May

Thank you @chelliepingree for your question about insurance coverage and the #MedicalNutritionEquityAct during the @AppropsDems hearing on #formulashortage and TY for co-sponsoring MNEA! #SupplyAndACCESS

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Jordann Coleman@JColeman02·13 May

Thank you @StephanieABC7 for sharing our story! thanks for highlighting the needs of those w/ #metabolic and conditions who rely on these formulas as a primary medical treatment for life. Their crisis won’t end when supply resumes until we pass the #medicalnutritionequityact”

Stephanie Sierra@StephanieABC7

#BayArea 9-year-old running out of life-saving medical formula amid shortage #abc7now abc7ne.ws/3NbKCwx

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Jordann Coleman@JColeman02·13 May

Thank you @TODAYshow and @jolingkent for sharing the impact on the Metabolic Community. The crisi won’t end when supply resumes. We need the #MedicalNutritionEquityAct to protect us!

TODAY@TODAYshow

Parents across the country are facing a crisis as supply chain issues and recalls have caused a massive baby formula shortage. @jolingkent has the latest.

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Jordann Coleman@JColeman02·11 May

Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @MaxineWaters pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB

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Jordann Coleman@JColeman02·11 May

Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @RepJuanVargas pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB

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Jordann Coleman@JColeman02·11 May

Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @RepDavidValadao pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB

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Jordann Coleman@JColeman02·11 May

Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @NormaJTorres pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB

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Jordann Coleman@JColeman02·11 May

Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @RepThompson pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB

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Jordann Coleman@JColeman02·11 May

Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @RepMarkTakano pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB

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Jordann Coleman@JColeman02·11 May

Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @RepSwalwell pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB

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Jordann Coleman@JColeman02·11 May

Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @MichelleSteelCA pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB

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Keşfet

@RepMcGovern @joniernst @SenBooker @FrancesSSellers @FrankPallone @CathyMcMorris @EnergyCommerce @repdianadegette