Maggieg

@CFQuestForCure @jenni_minto It is always a privilege to meet colleagues from @CFQuestForCure - @jenni_minto & I very much valued the lived experienced shared, discussing the @NICEComms @online_his MTA draft guidance & listening to your aspirations for the #CF community - we will continue to engage with you

@jackiebmsp @cftrust Thanks Jackie. A worrying time for all. Appreciate your continued support for those with CF.

.@cftrust's survey found 87% worried about the #costofliving. People with cystic fibrosis have higher food & energy bills as they need more calories to maintain a healthy weight & may need to power medical equipment. I support reducing the CF cost burden #ISupportPeopleWithCF

@jackiebmsp The Scottish CF community are so grateful for all your help during our campaign. It would have been a tougher battle without you guiding us every step. #inthistogether #nooneleftbehind

Today marks one year since Kaftrio gained its license in Scotland and started changing the lives of those with Cystic Fibrosis. We need to make sure that everyone with CF has access to the best possible treatments #KaftrioOneYearOn

@alisonstrath @scotgovhealth @DrGregorSmith @PermSecScot @Carolineslamb @rosemarieparr @keithridge1 @AndrewEvansCPhO @cathyharrison00 @DonaldCairns @jasonleitch Very well deserved. Congratulations!

I am humbled by the wonderful messages of support for my appointment as #CPO & delighted for the opportunity it offers to ensure the pharmacy profession plays into the @scotgovhealth NHS recovery agenda. I am also indebted to the giants on whose shoulders I stand on (tagged)❤️

@jackiebmsp Thank you Jackie Baillie for helping my daughter and hundreds of others in Scotland with cystic fibrosis. Because of your help, and bringing together all parties in Scottish Government on this issue, around 800 people with the condition now have a brighter and better future.

This isn't just a job for me, it's about my service to the community I live in. I am fighting for all of us.

@Alidilly @NHSEngland This is not acceptable. Those in need can’t wait that long. Sort it now.

🤔 are we going to hv to get our placards out again? Inequality within the UK is NOT ok. It’s all very well saying those with 1 DF508 mutation & any other shld recv Kaftrio in 6 months but that’s 6 months of deterioration & there’s a respiratory virus pandemic. @NHSEngland

@hitachi_capital been trying to contact you for 2 days by phone. No options for my question via FAQ on your website and your app is down. Not happy

@DrGregorSmith @jasonleitch @JeaneF1MSP my adult daughter is shielding as she has cystic fibrosis. Who will be involved in decisions for bespoke advice given to those with CF in Scotland? @CFQuestForCure

@AnasSarwar I’m sure your banter cheered everyone up. #InThisTogether

Spent a large chunk of the day making “kindness calls” to people across Scotland who need support through the current crisis. It was honestly such an enjoyable and uplifting experience amongst all the anxiety. I hope we can keep this spirit even after we get through this. 🙏🏾❤️

@gemchem @Tesco Have you registered with your local council by texting the number in the letter you received? Deliveries are being set up this week for Scotland.

Spent every hour through the night checking for new @Tesco delivery slots as we have a son with #cysticfibrosis and I’m pregnant, so no outings for us. Nothing. Shattered and no food shop 😓 going to be a long day!

@alisonstrath Happy Easter to you and yours. Enjoy your downtime. Very well deserved.

Every year the emergence of the green leaves on our beech hedge fills me with the joy of spring. Never more so than this year. Wishing everyone a Happy & Safe Easter!

@scotgov @jasonleitch @jackiebmsp been informed that those in Scotland (not sure about rest of UK) who are texting their CHI number to 07860 064525(number giving in the official letter) will not be successful if you are on EE mobile network. Are you aware of this?

@cftrust are you working with supermarkets in Scotland to ensure priority delivery slots are available? Those affected are really struggling to get supermarket home deliveries @jackiebmsp @CFQuestForCure

We’ve heard back from NHS England, as expected they’ve confirmed that not everyone with #cysticfibrosis has received shielding information. They say there has been a delay but letters are on their way to everyone with CF. (1/3)

@scotgov People shielding sent their CHI number to the phone number in Scot gov letter. Many have not had an automated reply. They need access to supermarket delivery slots. Please help. @jackiebmsp @cftrust @CFQuestForCure

@asda Does this include those living in Scotland?

The government has identified a number of people who are extremely vulnerable during this time. They have now shared this information with us and we’ll be doing all we can to make sure these customers get what they need while they stay safe at home. 1/2

Get involved. raffall.com/15171/enter-ra…

Please donate anything you can to help the CF community right across the UK. Thank you @CFQuestForCure @Diane__Murray @TraceyMillar19 @ResearchGray @BBCScotlandNews @benshephard @thismorning @NickMedhurst

@SkyHelpTeam And you. Keep safe!

@M44GYG Amazing 🙌 I'm glad you got this sorted. Enjoy the rest of your evening 🙂 ^SMc

Pause Sky Sports Online You can now pause your Sky Sports subscription online: sky.com/pausesports The web page is busy so you may be placed in a short queue during busy periods. All other help can be found at sky.com/help

@SkyHelpTeam Hi! Got it sorted today thank you 😊

@M44GYG Hello 👋 Did you manage to get this sorted? 🙂 ^SMc