PatientsEngage

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PatientsEngage

PatientsEngage

@PatientsEngage

Supporting patients & caregivers in mgmt of chronic conditions. Follow us for lived experiences, health info, tips. INFORM, ENGAGE, EMPOWER ! Founder @ap_mittal

India and Singapore Katılım Temmuz 2014
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DRA India (Disability Rights Alliance)
24 hours after a missing persons complaint was lodged with J8 Neelangarai, the FIR is still awaited. Others missing on 27th are listed on @tnpoliceoffl missing persons portal, but Janarthanan, a young disabled adult, at risk w/o seizure medication, isn't.😡 🆘 @SandeepRRathore!
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Dr. Arun Gupta MD FIAP (Ped)
Dr. Arun Gupta MD FIAP (Ped)@Moveribfan·
Outrage over UN–Nestlé partnership - The Lancet thelancet.com/journals/lance… Why this partnership is troubling. @PhilBakerNZ says “Nestlé sits at the centre of a global network of front groups that actively lobby against the adoption of policies that seek to protect and promote healthy diets”. Hundreds of scientists across the world have called to end this partnership of United Nations University (UNU) Institute for Water, Environment and Health (INWEH) with Nestlé. @TheLancet reached out to Nestle and University-silence @UN Principles?
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Partha S Kar 🇮🇳🇬🇧🏏🎥
If there was one article you want to read as a clinician? Read this Via @jenna_taglienti - an absolutely stunning write in @JAMA_current "Medicine can have extraordinary meaning. But it cannot substitute for being present in your own life. The world may need us as physicians. But the people who love us need us as ourselves. And that is the role no one else can fill." Brilliant - and much love to you 'Time is Finite" jamanetwork.com/journals/jama/…
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Anant Bhan
Anant Bhan@AnantBhan·
The @SRFmentalhealth Sujit John Research Fellowship Those interested in more details may write to sjresfell@scarfindia.org.
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Anuja Jaisswal
Anuja Jaisswal@AnujaJaiswalTOI·
The National Medical Commission (NMC) has directed all medical colleges and hospitals to restrict the use of stem cell therapy to a limited set of approved diseases, warning that any violation will invite legal action. The advisory follows a recent judgment by the Supreme Court of India, which came on a petition arguing that stem cell therapy, still experimental, was being promoted as a “treatment” or “cure” for Autism Spectrum Disorder (ASD) in clear violation of existing laws and guidelines. #ASD #stemcell #autism #NMC @timesofindia
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ICMR- NINE
ICMR- NINE@icmrnine·
Cancer registry data show that early-onset colorectal cancer is rising in India, often diagnosed at advanced stages. Achieving equity across crc continuum means ensuring accessible screening, timely diagnosis, affordable treatment, and quality care for all #CRCAwarenessMonth
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Teena Thacker
Teena Thacker@Teensthack·
India’s drug regulator has launched a nationwide crackdown on unapproved #FDC drugs, flagging circulation of at least 90 such medicines and directing states to take immediate action against their manufacturers, marketers and distributors.
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PatientsEngage
PatientsEngage@PatientsEngage·
@spkalantri documenting the architects of MGIMS : 1. Dr. Sushila Nayar 'The graduates would not go to villages. They had been trained in cities, for cities. What if, she reasoned, you trained them in a village from the start — in the dust and heat and reality of rural India?'
SP Kalantri@spkalantri

I retired as Medical Superintendent of Sevagram Hospital three years ago. Since then, I have been waging a quiet war against forgetting. It began with blank stares. A first-year resident, fresh from her MBBS in Kerala, drew a blank when I mentioned Dr. Sushila Nayar, our founder. Another asked, “Dhirubhai who?” about a former president. These were the people who built MGIMS. Yet their names are fading in the very place they shaped. I have called this project Architects of MGIMS. Institutions are not made of bricks and reports alone. They are shaped by those who arrive, argue, disagree, create, persist—and slowly leave their mark. To piece this together, I went back to annual reports from the 1970s, faculty records, and long conversations with retired teachers now in their eighties—their spouses, children, and colleagues. I met those still on campus. So far, I have written 93 profiles—not a polished history, but something of the texture of our early years, before silence claims them. It now lives as a digital archive, open to all. We begin today, on Id-Ul-Fitr, with the first profile—Dr. Sushila Nayar. The hospital corridors are quiet for the holiday, but perhaps these pages will bring Sevagram to life again. Read here: books.kalantri.co.in/architect/dr-s…

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The BMJ
The BMJ@bmj_latest·
A fundamental shift in clinical trial design to include pregnant and breastfeeding women is needed to make up for the “significant evidence gap” surrounding medication use in these groups, experts say bmj.com/content/392/bm…
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PatientsEngage@PatientsEngage·
Patient advocate Ms. Beth Emery, JD, delivered a powerful challenge. She asked investigators a question that has stayed with me: “Are you demanding more evidence for de-escalation than you demand for adding a new therapy? And if so, why?” #CommonSenseOncology
Jame Abraham, MD, FACP@jamecancerdoc

Forgotten Lessons From South Africa: My Oped in @ASCOPost ascopost.com/news/march-202… @ASCO @SABCSSanAntonio @OncoAlert Are you demanding more evidence for de-escalation than you demand for adding a new therapy? And if so, why?”

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Teena Thacker
Teena Thacker@Teensthack·
The government has issued an advisory cautioning pharmaceutical companies against the use of surrogate advertising to promote #GLP-1 drugs, amidst growing concerns of rampant misuse by gullible consumers. @TheEconomicTimes share.google/DLem2HY4PCdcKO…
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Nav Toor
Nav Toor@heynavtoor·
🚨BREAKING: MIT hooked people up to brain scanners while they used ChatGPT. What they found should concern every single person reading this. ChatGPT users showed 55% weaker brain connectivity than people who didn't use it. Not after years. After just four months. Here's how they tested it. 54 people were split into three groups: one used ChatGPT to write essays, one used Google, and one used nothing but their own brain. They wore EEG monitors that tracked their brain activity in real time across four sessions over four months. The brain-only group built the strongest, most widespread neural networks. Google users were in the middle. ChatGPT users had the weakest brains in the room. Every time. Then the memory test hit. Participants were asked to recall what they'd just written minutes earlier. 83% of ChatGPT users couldn't quote a single line from their own essay. They wrote it. They couldn't remember it. The words passed through them like they were never there. It gets worse. In the final session, ChatGPT users were told to write without AI. Their brains were measurably weaker than people who never used AI at all. 78% still couldn't recall their own writing. The damage didn't go away when the tool was removed. Meanwhile, brain-only users who tried ChatGPT for the first time? Their brains lit up. They wrote better prompts. They retained more. Their brains were already strong enough to use AI as a tool instead of a crutch. The researchers also found that every ChatGPT essay on the same topic looked almost identical. More facts, more dates, more names. But less original thinking. Everyone using ChatGPT produced the same generic output while believing it was their own. MIT gave this a name: cognitive debt. Like financial debt, you borrow convenience now and pay with your thinking ability later. Except there's no way to pay it back. The question isn't whether ChatGPT is useful. It's whether the price is your ability to think without it.
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Pramesh CS
Pramesh CS@cspramesh·
Countries with early HPV vaccine adoption show large declines in HPV infection, high-grade cervical lesions, and cervical cancer incidence. Population impact is now clearly documented. Source: WHO Weekly Epidemiological Record; NEJM 2020; Lancet Global Health 2023 (4/n)
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