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The @bcndp budget has once again failed our community. @Josie_Osborne we urge you to act immediately and prioritize the care this community deserves. Please see our response here - mefm.bc.ca/post/response-…
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ME|FM Society of BC
2.5K posts
ME|FM Society of BC
@mefmbc
We advocate for patients living with Myalgic Encephalomyelitis, Long-COVID and Fibromyalgia.
Vancouver, British Columbia Katılım Kasım 2014
571 Takip Edilen593 Takipçiler
February support group sessions are open!
Please register here : mefm.bc.ca/support-groups
#mefm #CFS #longcovidsupport #fibromialgia #mefmbc #freesupport
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The holidays can be tough when you're managing ME, FM, or Long COVID. We've got you. 💙
Sign up for a extra Support Group with Shannon — Mon, Dec 22, 1pm for anyone needing connection - shorturl.at/qOCMi #MECFS #LongCOVID #Supportgroup
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Join @OpenMedF for a webinar: OMF’s Research Portfolio
📅 October 30 | 🕙 1 PM PT
Hear from Linda Tannenbaum, OMF Founder & CEO, and Danielle Meadows, VP of Research Programs, about OMF Global & OMF Canada’s research progress, with live Q&A.
👉 Register: ow.ly/WyYp50X6rVV
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ME|FM Society of BC retweetledi
🔥Mount Sinai launched a clinical manual for treating Infection Associated Chronic Illnesses #LongCovid #MECFS #Lyme
Patients can download as well.
Great resource made by great people. Loving the transparency as always! @PutrinoLab @microbeminded2 @ravenscimaven
CoRE at Mount Sinai@CoRESinai
1/ Millions are living with long-term illness after infection, often without answers. Today, we’re launching the USA's first clinical manual for treating Infection-Associated Chronic Illnesses (IACIs). #LongCOVID #MECFS #Lyme 🔗 Read the announcement: mountsinai.org/about/newsroom…
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ME|FM Society of BC retweetledi
As Severe ME Day comes to a close, we light a candle to remember those we have lost. We send our love to all who are grieving. We hold each other in our hearts as we each have a list of names that goes through our minds as we light our candle.
#SevereMEday #UnitedforME
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ME|FM Society of BC retweetledi
What if your body couldn’t bear light, sound, movement — or even touch?
Today, #SevereMEDay, we ask you to imagine living that way not just for a day… but for years.
For people living with Very Severe ME, this isn’t a metaphor — it’s reality.
🧵
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ME|FM Society of BC retweetledi
In honor of #SevereMEDay, we’re launching #UnitedForME, a shared hashtag to amplify stories, art & education from the Severe ME community. Join us in uplifting voices that need to be heard. 💙 #SevereME @openmedf @plzsolvecfs @meactnet
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ME|FM Society of BC retweetledi
We are excited to share the initial findings from Decode ME that people's genes contribute to their chances of developing ME/CFS. Read more here:
decodeme.org.uk/initial-dna-re…
#DecodeME #MyalgicEncephalomyelitis #MEAwareness
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PHASE 2 of #MEFMSummerTogether starts now!
We've mastered heat management-now let's tackle social navigation.Summer brings increased social expectations when chronic illness symptoms may be most challenging.➡️4 wks: boundaries, gatherings, communication, workplace accommodations
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For our community, navigating summer can be a struggle.Basic home modifications can drop your indoor temp by 5-10 degrees: Close curtains during peak🌞,10 AM-4 PM
Strategic fan placement for cross-ventilation
DIY swamp cooler = bowl of ice + fan
#MEFMNavigatingSummer
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@mefmbc Ohh I probably know them all, but this is much needed.
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The Navigating Summer toolkit is LIVE! It includes strategies for surviving summer with chronic illness: ✅ Heat management & emergency protocols ✅ Energy conservation guides ✅ Social navigation scripts ✅ Travel planning worksheets
Register 2 DL- mefm.bc.ca/toolkits
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ME|FM Society of BC retweetledi
#MECFS is a severely debilitating illness that leaves about 25% of the patients housebound. Did you know that the illness does not only affect the lives of the patients, but that the quality of life of partners and other family members also is severely impaired? #MEAwarenessHour
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350,000 people currently live with Me/Fm and Long-COVID ME , they collectively represent a major public health burden in BC but have almost zero resources. @Josie_Osborne we look forward to speaking to the budget next week. (@DrKindyMLA )
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ME|FM Society of BC retweetledi
For ME Awareness Week 2025, we shared infographics raising awareness about the debilitating nature of ME/CFS, but also about the research being conducted to tackle the symptoms associated with the disease.
For ease of access, we have collated: bit.ly/mesymptomsandr…
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ME|FM Society of BC retweetledi
Edited Clip from The Golden Girls (1989): Dorothy finally sees a doctor who diagnoses her with Chronic Fatigue Syndrome, he explains that some doctors aren’t aware or don’t believe in it so they tend to blame the victim. #MECFS
Note: Some medical details are outdated
Adam@ABrokenBattery
Clips from The Golden Girls (1989): Dorothy sees a neurologist after months of #MECFS symptoms. He tells her there’s nothing wrong, it’s just ageing — and suggests a psychiatrist. She begins to doubt herself—until Rose comforts her saying “Doctors don’t know everything.”
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ME|FM Society of BC retweetledi
After recent and harmful policy directives targeting Vancouver’s unhoused, Council must support this motion as a signal that they actually do care about people living in poverty.
Housing is a human right.
COPE: Coalition of Progressive Electors@COPEVancouver
Housing is a human right. This week @SeanOrr and Pete Fry have a motion for the City to submit a resolution to the UBCM calling on the BC govt to enshrine this principle in legislation & housing strategies. SIGN UP to speak at Council: vancouver.ca/your-governmen… #vanpoli #bcpoli
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ME|FM Society of BC retweetledi
@mefmbc If you haven’t checked it out yet, don’t miss your chance to enter to win over $3k in prizes for a great cause! Head over to PrizeDraw.OperaMariposa.com today - then be sure to check out all the other music, art, merch and more in support of the chronic illness community!
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ME|FM Society of BC retweetledi
Did you know? Our charitable partner @mefmbc is run by & for people with #MECFS, #Fibromyalgia, & now #LongCovid as well. Long Covid is an umbrella term for the complex suites of symptoms that can persist or develop after a Covid infection. Learn more: mefm.bc.ca/what-is-me-wha…
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